when chronic pain is fatal

This morning, I saw something in my Insta spoonie community that is troubling me terribly. This beautiful young woman committed suicide after being unable to get help for severe pain due an endometriosis and interstitial cystitis flare: Her last post on her Facebook account was this: I have so many thoughts that I don't know…

i am the luckiest

A couple of weeks ago, I came home after a long Saturday twelve, pulled into our garage in Edwin, my fearless Tahoe (he's my faithful steed), and immediately totally flipped the flip out. Sitting on my husband's side was this: Since the new Beetles came out in 1998, I've wanted one. Of course, since 2000,…

when we aren’t invincible

Imagine you go to work one day, not feeling so well. Suddenly, you are weak, clammy, having difficulty speaking. You can't stand up. You are terrified. Your coworkers, frightened and concerned about you, immediately call for the paramedics and wait with you. . . A few weeks later, you find yourself in a hospital bed…

60 days – plus 7

If I pitched an idea for a film based on the past 7 days of my life, no one would go for it - too unrealisic, no way anyone's life is that crazy. But that crazy it has been. Incredible highs, terrible lows, very few moments of just normal. Life happens that way sometimes. In…