the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

spoonie

  • under the weather.

    I so enjoy talking about our books, current events, and other interesting things that come up here – rather than where we actually started, which is my autoimmune disease and the resultant complications that I experience in this unruly body. However, though I am so grateful for our other topics, this past week has brought… Read more

  • acceptance.

    Recently, my health situation has been growing more and more tumultuous, with several complications arising over the past few months, taking me from a period of relative stability (for me) – dealing with my usual flares but nothing else really unexpected – to my suddenly again feeling like a very ill person. As this has… Read more

  • chronic illness and feeling forgotten.

    Recently, I have been more ill than usual in some ways, with this fierce pneumonia persisting on top of frequent flares – and now a cataract surgery scheduled for next week as well (because I am so blind in my left eye that, uncorrected, my vision is 20/counting fingers – meaning I cannot see the… Read more

  • a worsening pneumonia for mother’s day this year.

    Y’all, right now it’s pneumonia 1, miranda 0.  😦 After taking antibiotics, meds, and inhalers since last Monday, I was getting worse by Saturday night – having more difficulty with my throat and more tightness and heaviness in my chest than I have had through the week. Then, Sunday morning, I was exhausted, struggling to… Read more

  • pneumonia days part deux.

    Almost a year ago now, I posted about a not-so-grand urgent care adventure that resulted in a diagnosis of pneumonia. pneumonia days, oh my. Well, today was a sort of spoonie deja vu in a most yecchy way. I mentioned yesterday that I started *another* new antibiotic for respiratory issues – however, my chest has… Read more

  • a special book report – between two kingdoms.

    We have several books to talk about this week – but one that needs its own post. I am not even entirely sure how I ended up with a Libby hold on Suleika Jaouad’s Between Two Kingdoms – I think it was recommended because of my spoonie reading? – but when it came around, it really called… Read more

  • the early warning signs of autoimmune flares.

    As I often share here – because I am immunocompromised and have several autoimmune conditions, as well as CRPS, a neurological pain condition that is unpredictable and easily set off by external stimuli, – I am always in a state of managing symptoms, though their presentation and severity is everchanging. Still, recently, my symptoms have… Read more

  • marathon.

    In my Facebook memories this morning – which I often forget to check but remembered by chance – was the reminder that I finished the full Mercedes Marathon 15 years ago today. It had been a dream of mine for SO long to finish a marathon and I fought incredibly hard, both in training at… Read more

  • seeing myself again.

    *I’m forcing myself to finish this post after days of stalling, leaving it half completed. I want to finish for my fellow spoonies; I’m just feeling a bit exposed. * Over the years, I’ve often shared about my prednisone journey, posting memes, and trying my best to keep my good humor as it has brought… Read more

  • blogmas day 4 – my annual pre-christmas malady.

    The stunning tree sculpture pictured above was sighted while traipsing in to see one of my many doctors for what feels like my annual pre-holiday *very* minor in-office procedure – just enough to require a 14 day course of antibiotics. I am really, really, really grateful to be as well as I am with all… Read more