the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

spoonie life.

  • celiac awareness day.

    Today is National Celiac Awareness Day, and, though I’ve written about my celiac diagnosis before, I always feel that I should share a bit on this day when it rolls around because celiac disease has had – and continues to have – such a significant impact on my life and also because it can be… Read more

  • my changing faces of illness.

    As it is Disability Awareness Month, one thing I wanted to talk about – that I’ve mentioned before but never focused on as a topic – is the impact my assorted medications have had on my appearance, particularly the chemo drugs and the prednisone therapy. It may be a vanity issue – but, still, it… Read more

  • disability awareness.

    Every July, in spoonie circles, I begin seeing that it is Disability Pride Month. . . And, every July, though I understand what is meant by this, the word choice – “Disability Pride” – just makes me all kinds of itchy, yucky, cringey. While I can’t abide that phrasing, the idea – bringing awareness to… Read more

  • sorting the new variant.

    Our society has seemingly developed a sort of “COVID information fatigue,” with people prone to just tune out the news and warnings as things change with the – very much ongoing – pandemic situation. I totally get it; I’m worn out with it too. We all are. Unfortunately,  just checking out of the news is… Read more

  • methotrexate and med prep day.

    Well, y’all, it’s Wednesday, so here in the Hippie Hut that means it’s time for plant watering, med prep day (where I sort ALL the meds for the week), and my weekly methotrexate injection is due as well. As I have just written about the issues we are beginning to see with methotrexate and those… Read more

  • fire on the 4th.

    This 4th, even more so than the past several, I am feeling especially jaded – and angry and as though my personal space has been completely violated. (And, considering the medication issue that has come to my attention – on this, the seven year anniversary of my beginning methotrexate therapy –  my personal space HAS… Read more

  • i forgot.

    It turns out today is finally the National Day for my people – it is legit “I Forgot Day.” I am so serious. Seeing as how I was forgetful as hell before I ever met rheumatoid arthritis or any of my other diagnosis – and then I added a large helping of spoonie brain fog… Read more

  • spoonies and the harm this new roe business is causing.

    It’s been a full week since the release of the ruling on Roe and it’s still fresh and we are still unraveling all of its implications. And we have a serious (and despicable) problem. And I am furious. Well, there are many problems with this situation – but among them is that those making these… Read more

  • camp pb&j.

    Today I’ve still been just incredibly sick with this flare: migraine, facial burning and throbbing, nausea, exhaustion, body on fire. . . The works. This one seems to be sticking. With the nausea, it is so difficult to find anything appealing to eat – which would be fine, except that taking the large collection of… Read more

  • road tripping with my precious family – and spoonie sick.

    Twice over the weekend, we postponed our trip to the lake to visit Pop for his birthday and Father’s Day owing to my leftover illness/resultant flare that has just been stubbornly hanging on. Along with some (at times) overwhelming fatigue and gnarly body pain, I’ve been dealing with the edges of the really ugly CRPS… Read more