the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

spoonie life.

  • oh, the flare bear.

    After being happy that I managed a busy Thursday – ironically to prep for the weekend – my body absolutely said enough. Friday, I just could not get going properly, with more naps than your average preschooler, dealing with achy – achy – joints, and my hands just not cooperating. I was really hoping –… Read more

  • celiac awareness day.

    Today is National Celiac Awareness Day, and, though I’ve written about my celiac diagnosis before, I always feel that I should share a bit on this day when it rolls around because celiac disease has had – and continues to have – such a significant impact on my life and also because it can be… Read more

  • my changing faces of illness.

    As it is Disability Awareness Month, one thing I wanted to talk about – that I’ve mentioned before but never focused on as a topic – is the impact my assorted medications have had on my appearance, particularly the chemo drugs and the prednisone therapy. It may be a vanity issue – but, still, it… Read more

  • disability awareness.

    Every July, in spoonie circles, I begin seeing that it is Disability Pride Month. . . And, every July, though I understand what is meant by this, the word choice – “Disability Pride” – just makes me all kinds of itchy, yucky, cringey. While I can’t abide that phrasing, the idea – bringing awareness to… Read more

  • sorting the new variant.

    Our society has seemingly developed a sort of “COVID information fatigue,” with people prone to just tune out the news and warnings as things change with the – very much ongoing – pandemic situation. I totally get it; I’m worn out with it too. We all are. Unfortunately,  just checking out of the news is… Read more

  • methotrexate and med prep day.

    Well, y’all, it’s Wednesday, so here in the Hippie Hut that means it’s time for plant watering, med prep day (where I sort ALL the meds for the week), and my weekly methotrexate injection is due as well. As I have just written about the issues we are beginning to see with methotrexate and those… Read more

  • fire on the 4th.

    This 4th, even more so than the past several, I am feeling especially jaded – and angry and as though my personal space has been completely violated. (And, considering the medication issue that has come to my attention – on this, the seven year anniversary of my beginning methotrexate therapy –  my personal space HAS… Read more

  • i forgot.

    It turns out today is finally the National Day for my people – it is legit “I Forgot Day.” I am so serious. Seeing as how I was forgetful as hell before I ever met rheumatoid arthritis or any of my other diagnosis – and then I added a large helping of spoonie brain fog… Read more

  • spoonies and the harm this new roe business is causing.

    It’s been a full week since the release of the ruling on Roe and it’s still fresh and we are still unraveling all of its implications. And we have a serious (and despicable) problem. And I am furious. Well, there are many problems with this situation – but among them is that those making these… Read more

  • camp pb&j.

    Today I’ve still been just incredibly sick with this flare: migraine, facial burning and throbbing, nausea, exhaustion, body on fire. . . The works. This one seems to be sticking. With the nausea, it is so difficult to find anything appealing to eat – which would be fine, except that taking the large collection of… Read more