Well, y’all, it’s Wednesday, so here in the Hippie Hut that means it’s time for plant watering, med prep day (where I sort ALL the meds for the week), and my weekly methotrexate injection is due as well.
As I have just written about the issues we are beginning to see with methotrexate and those of us with autoimmune disease having access to our medication – while at the very same time my meds have just needed to be increased again because my symptoms have worsened – I thought I would share what medication and methotrexate day look like to keep me chugging along.
Each week, I always pull out all of my big storage boxes to load my weekly medication dispensers as well as the prn meds I use daily and my emergency supplies that are always with me.
After getting meds ready, I take my weekly methotrexate injection – the medication that many autoimmune patients are suddenly having difficulty obtaining because of this new SCOTUS ruling.
I CANNOT be without it – and they can’t either. The consequences are severe.
Since methotrexate injections are subcutaneous – like insulin – I inject myself in my abdomen – but, unlike insulin, I do have to say that MTX burns like fire for a bit.
Still, it is needed.
Right now, I am supposed to start a new RA med soon in addition to my others that I already take but I still haven’t come back to baseline from the flu – or close enough for comfort enough – to try just yet. I’m holding off another week but I’m hopeful for maybe next Wednesday. All the good vibes, prayers, and warm fuzzies are appreciated.
After the MTX injection, I follow it with an oral dose of Zofran – which I’ll be taking through today and likely tomorrow.
Always with methotrexate – but especially since my dosage has just increased trying to fight one beast of a flare – what we call methotrexate hangover, which is exactly what it sounds like – with nausea, a gnarly headache, and fatigue – will likely be with me for a few days.
Regardless of the unpleasant side effects though, methotrexate protects my joints and organs and helps to literally keep me alive. I can’t express enough my distress at what I’m hearing about these medication issues among spoonies right now.
This is a fight we shouldn’t need to have.
Our lives matter too.
Be well, everybody. Take care of yourselves and each other.
Grace and Blessings.
I just found your blog. I was diagnosed with RA a little over a year ago and your blog speaks to me so much. I love your realness and honesty. I also am taking methotrexate and was reading this post and kept nodding my head along. Yes to all of this. Thank you for writing!
Thank you so much. I’m so sorry you are dealing with this too. You definitely are not alone. Sending you love and so many prayers.
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