spoonie challenges, changes, and staying in for a bit.

Y’all, it has been ride these past several weeks.

Of course, as I’ve written, we’ve had all sorts of personal things with loss in our family and saying goodbye to Mickodemus among other issues going on – and my body has been reacting violently.

Additionally, the summer heatwave that has lifted for a few days but will be right back is just kicking my heat intolerant arse and sending my post Covid fatigue into a tailspin.

Another major issue that is affecting me and MANY others with chronic illness is shortages of multiple medications that we require monthly. They simply aren’t available. Full stop. That has hit me particularly hard in the past week as well, combined with an irresponsible physician who is not helpful, to make for a difficult to manage situation.

All that said, I have been feeling pretty sickly.

oh, a vision today.

However, a few things are changing over the coming weeks that I hope will make a difference in my overall health.

I have been prescribed Enbrel, which I have not tried before, and am starting it tonight.

Because of the concerns about the additional immunosuppression with this medication as I am already immunocompromised, I will be staying home after I take it and not out where the people are for a bit. Still, despite the need for precautions for immune issues, I am relieved to be trying something new.

I am also expecting to be able to make a few other changes if all goes well with insurance – all prayers and good vibes are appreciated – and that will be a great relief to me and my family as well.

As always, onward. ❤

Be well, everybody. Take care of yourselves and each other.

Grace and Blessings.

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