the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

complex regional pain syndrome

  • my illness and disability related issues and my henry too.

    It has been a wild ride lately with my health and some new therapies, as well as some experiences I’ve had – along with my Ginny – as I’ve recently gotten to experience life as a significantly disabled person in my smartchair. There are several things I want to share. First, “New” Old Treatments In… Read more

  • home! and a goulash type post.

    I’ve been doing SO much sleeping since I last wrote – but now it’s time to get all caught up. Journeying Home On Tuesday, we had a fabulous trip back. During the first part of our return home, from Montreal to Newark, we were on a very small plane, a United Express, and I, having… Read more

  • more fabulous adventures. and all packed up to head home.

    As I write to you now, it is only a few hours before Ginny and I hop in our cab for the airport to head home to see our peoples – and we are both so ready. We have loved every minute of our time here in this wonderful city. . . but we are… Read more

  • a grand adventure. and a few more days to go. . .

    So, friends, I’ve been trying to write to you for several days now, but, honestly, every time I sit still, I fall asleep. It’s a wonderful tired – my Ginny and I have been having the most amazing time in Montreal, a city who has definitely stolen my heart, and I can’t wait to tell… Read more

  • spoonie confessions and adventure preparations.

    Okay, first, a spoonie “confession” of sorts: the past three weeks have been, in some ways, the worst CRPS flare I have had to date. They have been rough. And I have truly downplayed, minimized, understated the severity of the situation in some ways. Why? I think both because I didn’t want to believe it… Read more

  • autoimmune anomalies

    Part of living with multiple autoimmune diseases is that my body often develops really odd symptoms and syndromes out of the blue. Of course, since I was diagnosed with Complex Regional Pain Syndrome, I’ve come to expect the unexpected at anytime really – and I mentioned in my previous post that my migraines that I… Read more

  • tiny altars.

    So damn easy to say that life’s so hard Everybody’s got their share of battle scars As for me, I’d like to thank my lucky stars That I’m alive – and well. It’d be easy to add up all the pain And all the dreams you sat and watched go up in flames Dwell on… Read more

  • so so grateful.

    When I shared my previous post on Facebook, I had to laugh and tell everyone that I felt like the April Fools was on me, because, as sure as I wrote it all, my CRPS launched into a full pain crisis and has stayed there. I still meant – and mean – every word of… Read more

  • i’m really sick – but i’m really good too.

    Y’all, it seems that my Complex Regional Pain Syndrome (CRPS) is trying to flare in a bizarre sort of way right now. I’ve written about it before but CRPS is sort of a medical anomaly anyway and it is new to me as well as I just developed it at the end of last year… Read more

  • on a mission.

    Recently, I have been researching complementary therapies to hopefully improve my health and pain levels – in addition to, not in place of, my traditional medication regimen (though I would love to see that reduced one day – but that isn’t anything I foresee unfortunately). See, with my physicians, it feels as though I am… Read more