the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

complex regional pain syndrome

  • fabulous road tripping, visiting my beautiful bestie, accepting disability accommodations – and knowing that staircases are my mortal enemy now.

    We are in the middle of a wonderful road trip to see my bestie/sister friend, Ginny, in Tennessee and it has been just fabulous. Of course, as my CRPS has taken on a life of its own, I’m having to learn to live and travel differently – and this trip I had booked a room… Read more

  • changes.

    As y’all can see, things are different here today, and, after saying for so long that I wouldn’t be a chronic illness blogger, I’ve realized that it is time to let go of those ideas. When I was reading through my friend Sara Frankl’s book, Choose Joy, a few weeks ago, she wrote this about… Read more

  • christmas gratitude. and pj’s.

    Yesterday, Sara, Henry, and I were out in the sleigh, listening to Christmas music, and running some errands before our first real cold blast of the year comes through, as my CRPS legs don’t take very well to cold and we plan to be home and warm during it.  Henry was wearing his first Christmas… Read more

  • a super plain jane honest crps awareness month post.

    So, it is CRPS Awareness Month – and closing in on the one year anniversary of my diagnosis from Hale – AND I’ve been battling the flare from my worst, worst nightmares. This post isn’t going to get any blog style points – I’ve just been really out of touch since I’ve been so sick… Read more

  • my soul sister lorelai would be jealous – because i DO have haunted leg. . .

    First off, if you don’t get the Gilmore Girls reference, I am so sad for you. All is not well in your kingdom. . . 🙂 Spending a great deal of my time in bed recently, I have been doing much Netflixing, reading, Rosetta Stoning, and writing. begin at the beginning All that happened was… Read more

  • the worst night of my life.

    Sometimes the spoonie life just blows – no matter how hard we try to push through and keep going and make the best of it. And that has definitely been the past 24 hours for me. Cardiac Issues First, I landed in the ER with the cardiac issues I mentioned in the previous post. While… Read more

  • my body has gone rogue – but i’m still fighting.

    I don’t really know where to begin telling you what this body has been doing over the past week or so. In some ways, it’s been an even more wild ride than my recent hospitalization – and that’s saying something. I suppose I’ll begin at the beginning. CRPS On The Move With all that has… Read more

  • going home, starting iv’s, & getting better.

    It has been a wild ride these past several days, y’all – but all is well and I’m still kicking.   PICC Placements & Antibiotic Changes. On Monday, I was scheduled to have my PICC line placed so I could go home. Being a nurse for these 16 years now, I have assisted with many… Read more

  • facing a serious health crisis.

    This post I have to report a serious health crisis – but, thankfully, we are making it through. ❤ Initially, my left foot flared pretty nastily last month with my CRPS and my Rheumy tried a huge dosage of prednisone daily to see if that would knock it out – and it appeared to do… Read more

  • a terrible seven days comes to an end. and more gratitude than words can hold.

    Last Tuesday, July 23, Sara and I took Henry in for a seemingly routine cataract surgery. I was a bit concerned about having it done, just because. . . surgery, but the surgeon came highly recommended, Henry was almost completely blind due to the rapid onset cataracts related to his diabetes, and she assured me… Read more