When I shared my previous post on Facebook, I had to laugh and tell everyone that I felt like the April Fools was on me, because, as sure as I wrote it all, my CRPS launched into a full pain crisis and has stayed there. I still meant – and mean – every word of it. . . but isn’t that just how life goes sometimes?
Still, I have some thoughts I want to share tonight. . .
First, I read a horrific article today about the skyrocketing suicide rate among chronic pain patients – much higher than it already was – as physicians are abruptly changing and discontinuing their pain management programs due to new federal guidelines meant to contain prescription drug abuse that do not take into account people who take the medications for legitimate reasons. As a result, these patients see no end to their pain and feel that they cannot go on.
This has distressed me to no end.
I will be doing a lengthy piece exploring this very soon as it is so so unfair to our chronic pain community.
At the same time, while I am experiencing a pain crisis myself, it has reminded me to give extra thanks today for my own support system and even for a physician who is not always the most cutting edge or even the best listener – but who has definitely treated me better and been more kind than what my fellow spoonies have heartrendingly suffered.
And, then, I got a major shocker.
A dear spoonie friend in my group who shares similar diagnosis to mine was super proud of FINALLY getting off of her pred (after years) two weeks ago – and I was super proud for her (Lord knows I wish I could) – and seemed to just have a little cold at the end of last week.
She suddenly fell terribly ill over the weekend and very very nearly died. It is just a miracle that she is still with us. And I am so grateful that her husband realized that something was terribly wrong and rushed her to the hospital. Thank God.
It has been just terrible for her. Blessedly, I am so happy to report that she has just gotten home with tons of meds and treatments to continue recovering tonight.
In addition to being awful for her, it is also incredibly frightening to all of us in our little spoonie community when these sorts of things happen. We can’t help but be thrown off kilter a bit.
Soooo. . .
Having ridden out a full night of painsomnia last night and finally slept for six hours during the day today, I am just giving thanks.
Even with the nasty CRPS flare:
- I’ve had a lovely evening with my husband, daughter, and weenie dog. ❤
- I’ve had messages from both of my closest friends – sisters, really – about plans together. ❤
- I’m in the midst of working on a BIG article/project that is really important to me and I can’t wait to share it.
- I already know the next two big ones I’ll be writing after that – and I’m stoked about them as well.
- It was pad thai dinner night. Yum. 🙂
- I’m planning our whole foods menu for the rest of the week. This little nutrition nerd loves that stuff.
- I’ve been working on some holistic nutrition things as well and I can’t wait to share more soon.
- I’m completing my Paleo nutrition certification and my goal is to be finished by the end of next week.
As I sit here getting ready to work more on my projects, with my husband resting, Sara doing her schoolwork, and Henry chowing down on his bone, there is so much to be grateful for in my little Hippie Hut. And I am. ❤
Be well, everybody. Take care of yourselves and your people.
Grace and Blessings.