the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

spoonie life.

  • poetry loves.

    I am overdue for several posts in progress – but this week has pushed me to my edges, exhausted and with my CRPS unmanageable in a way it hasn’t been in years. As I’m trying to recover, one series I’ve wanted to set up here for some time is poetry shares, as I always have… Read more

  • acceptance.

    Recently, my health situation has been growing more and more tumultuous, with several complications arising over the past few months, taking me from a period of relative stability (for me) – dealing with my usual flares but nothing else really unexpected – to my suddenly again feeling like a very ill person. As this has… Read more

  • chronic illness and feeling forgotten.

    Recently, I have been more ill than usual in some ways, with this fierce pneumonia persisting on top of frequent flares – and now a cataract surgery scheduled for next week as well (because I am so blind in my left eye that, uncorrected, my vision is 20/counting fingers – meaning I cannot see the… Read more

  • exhausted.

    I’m behind on my posts this week – with several fun ones I can’t wait to get to, including a nifty book report and news of our seven foot sasquatch that has come to the Hippie Hut. 🙂 However, I have just not been able to shake this insane fatigue leftover from my pneumonia, with… Read more

  • doctor days.

    Today was my second doctor visit in as many days and I am worn out. Yesterday I saw my infectious disease doctor – the amazing physician who absolutely saved my life more than once during my bouts of sepsis and continues to manage my diminished immune situation so well. At my appointment, he checked me… Read more

  • persistent pneumonia and antibiotic ill effects.

    Today marks day 11 since I was diagnosed with pneumonia – though, in retrospect, the symptoms had been blossoming for a bit longer even. That said, after I failed the first antibiotic we tried, I was given Levaquin, a stronger antibiotic – but one that can have an ugly side effect profile, including tendon rupture.… Read more

  • a worsening pneumonia for mother’s day this year.

    Y’all, right now it’s pneumonia 1, miranda 0.  😦 After taking antibiotics, meds, and inhalers since last Monday, I was getting worse by Saturday night – having more difficulty with my throat and more tightness and heaviness in my chest than I have had through the week. Then, Sunday morning, I was exhausted, struggling to… Read more

  • pneumonia days part deux.

    Almost a year ago now, I posted about a not-so-grand urgent care adventure that resulted in a diagnosis of pneumonia. pneumonia days, oh my. Well, today was a sort of spoonie deja vu in a most yecchy way. I mentioned yesterday that I started *another* new antibiotic for respiratory issues – however, my chest has… Read more

  • scary spoonie eye issues – and sick days.

    Y’all, I don’t quite know where to start with the past couple of days and doctors and meds and anxieties – except to first say that I am okay, just crazy tired – and then begin at the beginning. Wednesday morning I had a regular doctors appointment where, in addition to managing my usual medications,… Read more

  • sickened by an old poison.

    Friday night, our family ordered the same takeout from a local restaurant that we have enjoyed for years. It seemed a bit different as we unpackaged it – but nothing to cause any alarm, just normal restaurant stuff (we thought). However, as I was sitting in the den with Courtney, immediately after we had eaten,… Read more