spoonie life.
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We have several books to talk about this week – but one that needs its own post. I am not even entirely sure how I ended up with a Libby hold on Suleika Jaouad’s Between Two Kingdoms – I think it was recommended because of my spoonie reading? – but when it came around, it really called… Read more
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As I often share here – because I am immunocompromised and have several autoimmune conditions, as well as CRPS, a neurological pain condition that is unpredictable and easily set off by external stimuli, – I am always in a state of managing symptoms, though their presentation and severity is everchanging. Still, recently, my symptoms have… Read more
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Leap Day is Rare Disease Awareness Day (observed on February 28 during non-Leap Years). As I’ve often shared here, one of the chronic conditions that has changed everything about my body is Complex Regional Pain Syndrome. When I was thinking of writing this post, I went back to my original post, in December of 2018,… Read more
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I want to talk about Amy Schumer – or, more specifically, some recent changes in her appearance. (And nastiness on the internet – and how quickly keyboard warriors say whatever they please about a woman with no regard for common decency.) A few weeks ago, Amy Schumer appeared on late night television promoting an upcoming… Read more
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In my Facebook memories this morning – which I often forget to check but remembered by chance – was the reminder that I finished the full Mercedes Marathon 15 years ago today. It had been a dream of mine for SO long to finish a marathon and I fought incredibly hard, both in training at… Read more
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*I’m forcing myself to finish this post after days of stalling, leaving it half completed. I want to finish for my fellow spoonies; I’m just feeling a bit exposed. * Over the years, I’ve often shared about my prednisone journey, posting memes, and trying my best to keep my good humor as it has brought… Read more
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It is my actual 45th birthday – and, as this week is dedicated to lists of 45, today will be 45 songs I dig for one reason or another. I’ve already done a post some time ago with my all time favorite songs – this list is different, more expansive, some old and new songs… Read more
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Tomorrow is my 45th birthday – and, as I say every year, after many harrowing hospital stays and several serious illnesses, I am deeply grateful for them all. Of course, today is a sick day – with all the weather changes and germs everywhere I could have predicted a puny birthday week – but spending… Read more
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Y’all. Henry Petunia and I, in all our autoimmune glory, are bundled, snuggled, huddled, nestled, snoodled up. Pick a word – we are inside. My word. As advertised, everything is frosty and temperatures are falling in our part of the world. The kicker is that we are now entering the “hard freeze” portion of this… Read more
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As an immunocompromised person, it seems as if I can’t go more than a month without a course of antibiotics, especially in winter – and in addition to my prophylactic daily antibiotic – but some are admittedly worse than others. I started one several days ago for my current respiratory malady that proved to be… Read more
