the spoonie life documented.

Documentary nerd that I am, last night, when I was back awake after an hour of sleep - Happy Hurricane Week to me - I turned on Amazon Prime Video and started geeking out. I actually watched two films during the night, between naps,  but the one that I want to really talk about is... Continue Reading →

let my life be a song

Oh, the beauty of the King You make righteous those who seek You have written and redeemed my story Let my eyes see Your kingdom shine all around Let my heart overflow with passion for Your name Let my life be a song, revealing who You are For You are Salt and Light. - Lauren... Continue Reading →

when RA is a vicious beast.

Two days ago, my young spoonie friend who already suffers terribly with Rheumatoid Arthritis, Crohn's Disease, and Addison's Disease, was admitted to the hospital emergently as a CT scan that was done to investigate why she has been suffering from terrible abdominal pain as well as nausea and vomiting revealed a large tumor in her... Continue Reading →

who the heck is allergic to ducks?!?

As y'all know, I've been fighting my autoimmune diseases for several years while getting more and more sick. I've also developed multiple food intolerances and many GI issues recently - which is not at all uncommon as I have celiac disease as well. I knew I was allergic to eggs but have been reacting to... Continue Reading →


This past Saturday, my husband's Father's Day trip to Atlanta to see the Braves play came around. We were super excited. It was also to be my first BIG outing in my smartchair. Since it arrived, I had only taken it out on some short trips to Target and such. As life sometimes happens, some... Continue Reading →

beauty for ashes

There is a show that I think airs on The CW (originally) called My Last Days. As the title implies, it films people who are suffering from terminal illnesses. Normally, as someone who suffers from a chronic illness and who has worked with many terminally ill patients, this show would not be my jam. And... Continue Reading →

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