We've had so many things going on in our home in the past few weeks. There have been some fabulous things: Our Sara celebrated her 15th Birthday. And my amazing cousin Blair and I finally got to go to our long awaited Lauren Daigle concert. AND my Red Sox won the World Series. If you... Continue Reading →
i’m getting (back) in the ring – like the strong bleeding heart liberal feminist I am.
Since the 1992 Clinton/Gore campaign, I've been a true yellow dog Democrat. At the time, my Daddy worked every other week in Arkansas and I had him bringing me back all kinds of campaign gear, several years before I was old enough to vote. He said I'd be more conservative when I got older -... Continue Reading →
the best of and the worst of.
The smell of hospitals in winter, And the feeling that it's all a lot of oysters but no pearl. . . - Counting Crows I had a spectacularly shitty medical day today. Truly. Lots to tell. I've also had some wonderful times with my nearests and there are some soul stirring things I want to share... Continue Reading →
feeling the invisible.
Y'all, it has been a holy hell, beast of a week, with all kinds of new and exciting symptoms manifesting - yay, autoimmune disease - and old foolishness rearing it's ugly head too. All I have for this is "What the Frack?" As it happens, it's also Invisible Illness & Disability Awareness Week - that's... Continue Reading →
october 16th – so much to say, so much to say, so much to say. . .
October 16th is a heavy, heavy day and I have many thoughts to share this morning. First of all, I'm the person who takes forever to clean out my inbox and never thinks to delete messages from friends. Example: However, I am so grateful now that I often don't delete messages from friends after I've... Continue Reading →
sick season is here.
I woke up to the plague yesterday morning. It's "just a cold" to a normal human - but I'm not a normal human anymore. I'm immunosuppressed due to a combination of RA meds. So I feel like I have the most terrible case of the flu I've ever had in my life - though it's... Continue Reading →
a busy day, a good day, and then something that stopped me in my tracks.
With my bizarre sleep schedule, I often sleep for a few hours at a time and then my pain wakes me up - so I "nap nap" as my Henry knows it, throughout the day when I need to. As such, I woke up at about 3 AM yesterday morning and started working to get... Continue Reading →
the joy of sharing experiences – alternatively titled “Sara and I adore Stevie Nicks”
When I take my methotrexate shot, my entire schedule goes straight out the window for about 48 hours. There are chemo comas and stomach issues to ride out - and I just have to roll with it. So that's where I've been. But now I'm up from a long sleep, sharing a bowl of popcorn... Continue Reading →
a spoonie surviving the hurricane (and it was two hours away when it came through)
Yesterday morning, I woke up with some gnarly pain - which I expected with the absolutely terrifying hurricane coming into the coast: Sara and I worked to get what we needed to done fairly early but this afternoon I needed to run by my doctor's office for some labwork and pick up a couple of... Continue Reading →
