Recently, my health situation has been growing more and more tumultuous, with several complications arising over the past few months, taking me from a period of relative stability (for me) – dealing with my usual flares but nothing else really unexpected – to my suddenly again feeling like a very ill person.

As this has been happening, I received a message from my rheumatologist’s office that an additional MRI of my hips – which are already problematic – has been ordered because the recent x-rays didn’t look great.

I’m also awaiting a CT of my lungs to follow up on the pneumonia that I was dealing with a few weeks ago – and then I woke up with chest tightness again just yesterday, so back on nebulizer treatments it is.

Also yesterday, I was scheduled to have cataract surgery on my left eye – but was rescheduled as I was seen at Infectious Disease for a long-acting antibiotic infusion instead because my right foot and ankle had become inflamed, swollen, and infected, and had to be treated immediately to head off hospitalization.

 

 

I find myself again struggling with my CRPS symptoms – stabbing nerve pain in my face, particularly around my eyes, and other facial pain, as well as other systemic stabbing, shooting, and burning nerve pain.

I’m also finding that the arthritic pain throughout my body is difficult to predict or control.

Not that anything is ever actually in our control – but, right now, everything *really* feels out of reach in terms of having a handle on my health situation – RA, CRPS, migraines, asthma, immunocompromised health condition . . . 

(With this latest round of antibiotics and illness, I’ve had to cancel writer’s conference this year as well, an incredibly disappointing thing.)

Having reached the end of myself with all of this sickness, especially as I am trying to adapt to the changes it brings to our daily lives – when it keeps me from doing the things I would like to, I know I have to come to a place of acceptance.

The problem with chronic illness, I think, is that we all have to keep coming to that same place again and again.

Be well, everybody. Take care of yourselves and each other.

Grace and Blessings.