lions and tigers and flares, oh my! (and falls and gnarly injuries too)

(So often I want to write about things other than autoimmune disease and spoonie life – but I also think … More

blessedly, the right doctor for the job is a nurse. . .

As I’ve been dealing with this terrible situation with my rheumatologist, I’ve been thinking a lot about the things we … More

honoring the memory of erin gilmer – and considering some of my most difficult days at the hands of the medical community as well. (we must do better for those in chronic pain.)

As I wrote in my previous post, my rheumatologist had to take unexpected medical leave and cancelled all of his … More

chronic pain, being treated like garbage as a patient, and Hell’s own flare on the horizon. . .

While I’m generally a pretty positive spoonie – and a cooperative patient as well – being treated like hot garbage … More

it’s disability awareness (umm, pride?) month.

Though I understand its point, I haven’t been able to warm to the idea of Disability Pride Month. The wording … More

on the road again, loving our lindsey, and (finally) hugging my bestie once more.

On Saturday, Sara and I hit the road and headed to Paris, Tennessee, our sweet Lindsey’s hometown, for her Celebration … More

feeling 42, getting iv’s, and chasing myself

It’s a wild rumpus – mostly in the best way – here  as I’m wrapping up writing my book and … More

rejoicing in our eternal, unfailing Christmas hope.

Well, y’all, my last post was about Hope and Christmas week. Two of the very best overlapping things. After I … More

a tale of a ten day spoonie sick

Just today, a young spoonie friend – who has recently, sadly, received several serious diagnosis she is having to adjust … More

it’s CRPS awareness month – and goodness knows mine has shown up and shown out. . .

So, I’m actually running a day late for CRPS (Complex Regional Pain Syndrome) Awareness Month – because, honestly, I had … More