(So often I want to write about things other than autoimmune disease and spoonie life – but I also think … More
Category: complex regional pain syndrome
blessedly, the right doctor for the job is a nurse. . .
As I’ve been dealing with this terrible situation with my rheumatologist, I’ve been thinking a lot about the things we … More
honoring the memory of erin gilmer – and considering some of my most difficult days at the hands of the medical community as well. (we must do better for those in chronic pain.)
As I wrote in my previous post, my rheumatologist had to take unexpected medical leave and cancelled all of his … More
chronic pain, being treated like garbage as a patient, and Hell’s own flare on the horizon. . .
While I’m generally a pretty positive spoonie – and a cooperative patient as well – being treated like hot garbage … More
it’s disability awareness (umm, pride?) month.
Though I understand its point, I haven’t been able to warm to the idea of Disability Pride Month. The wording … More
on the road again, loving our lindsey, and (finally) hugging my bestie once more.
On Saturday, Sara and I hit the road and headed to Paris, Tennessee, our sweet Lindsey’s hometown, for her Celebration … More
feeling 42, getting iv’s, and chasing myself
It’s a wild rumpus – mostly in the best way – here as I’m wrapping up writing my book and … More
rejoicing in our eternal, unfailing Christmas hope.
Well, y’all, my last post was about Hope and Christmas week. Two of the very best overlapping things. After I … More
a tale of a ten day spoonie sick
Just today, a young spoonie friend – who has recently, sadly, received several serious diagnosis she is having to adjust … More
it’s CRPS awareness month – and goodness knows mine has shown up and shown out. . .
So, I’m actually running a day late for CRPS (Complex Regional Pain Syndrome) Awareness Month – because, honestly, I had … More