I believe in kindness. Also in mischief. Also in singing, especially when singing is not necessarily prescribed. – Mary Oliver
Recently, I have been researching complementary therapies to hopefully improve my health and pain levels – in addition to, not in place of, my traditional medication regimen (though I would love to see that reduced one day – but that isn’t anything I foresee unfortunately). See, with my physicians, it feels as though I am…
*This is just an introduction piece I wrote for another site and I’m posting it here as well. At age 33, I fell quite suddenly ill, not long after my happily ever after wedding to my amazing husband. After some really tough years of a bad situation, I had gotten out, moved on, met my…
Read more My broken body’s journey (so far) – and how I’m carrying on.
If you needed to consult the University of Google yesterday, you saw that even the Google art reflected the Year of the Pig (and it was adorable). My year is shaping up a bit differently though. . . You see, in medical schools everywhere, students are frequently taught an old expression: “When you hear hoofbeats,…
Read more happy chinese new year! – but it’s the year of the zebra for me.
First, let me make mention that yesterday, February 2, was World Rheumatoid Awareness Day. RA is the original beast in my world, having brought with it the disability and the broken feets and the CRPS and all the other mean and nasty stuff. By itself, though, RA is more than enough. . . This past…
In my little corner of the world, several of my near & dear have been facing some really damn HARD – my lifelong friend with metastatic breast cancer in her spine has just learned that she may have to deal with ANOTHER effing spinal surgery, a precious Tt sister had a beast of a relapse…
Read more becoming my own crps expert – and taking my life back.
On Saturday, I felt an odd SNAP in my left foot. It felt like a bone breaking, another one. That was followed by intense fatigue so I tried to rest as much as my body wanted since that is the foot that my Complex Regional Pain Syndrome (CRPS) started in and I certainly didn’t want…
Read more crps flare #2 – looks like it’s here to stay (and it’s no respecter of birthdays either)
Settle in, y’all. This is a long one. First of all, yesterday was ortho day – and that’s never good. But this time it was different. I also had another appointment scheduled after ortho. And I have STILL been incredibly sick with sinus plague that is causing nosebleeds and worsening body pain and fevers and…
Read more rotten physicians, overdue therapists, divine poets. . .
Today was a tiring – and important – day. I had my long awaited appointment with my Rheumy for him to review all of my information since the start of the CRPS. He did – and immediately confirmed the diagnosis. Though this was not unexpected – and is actually quite helpful as it will get…
Read more confirmation of the big scary diagnosis – and looking towards 40.
A couple of days after Christmas, my daughter and I both got sick as Hale. Like laid out with the bronchitis/sinusitis plague, sick as Hale. That’s when I also remembered that I always manage to get super sick right after Christmas – maybe due to being run down or around lots of people or angering…
Yesterday morning, I read an article about Colin O’ Brady becoming the first person to ever cross Antarctica unassisted, a truly incredible feat. https://www.nbcnews.com/news/world/american-man-first-solo-across-antarctica-unaided-n952186 The explorer who attempted the same, Henry Worsley, in 2016 fell ill and passed away, just 30 miles short of his goal. Still, what an amazing attempt. https://www.theguardian.com/world/2016/jan/25/explorer-henry-worsley-dies-during-antarctic-record-attempt It is also…
