get busy.

Like everyone else, I was just shocked and heartbroken to learn of the passing of Chadwick Boseman when his family shared the news on Friday evening. He was only 43 and had chosen to keep his cancer battle private so it was totally unexpected. A few hours after I saw the news, this well-timed and... Continue Reading →

disability awareness month.

Actually, I am calling July this. Everyone else mentioning it is calling it "disability pride month" - and I just can't go there. I totally get it - and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices... Continue Reading →

all the new health things.

This week has had some significant health changes for me. First - this one is fabulous - I have completed my IV antibiotic therapy and my PICC line was pulled today by home health. Yesterday, I realized since last July - so for a year now - I have spent more time WITH some kind... Continue Reading →

rowing harder.

On June 22, Angela Madsen, phenomenal, fearless woman, Paralympian, marine vet, died at sea, attempting to row the Pacific from California to Hawaii alone. She knew the risk, she wanted to go, she went. The documentarian and her crew who were recording Angela's efforts - and have since announced that, per the wishes of Angela... Continue Reading →

inpatient again. onward.

Like the rest of 2020, May has started off. . . not according to plan. I'm writing to y'all having just been admitted to the hospital, with bolus fluids going, my first doses of IV Vanco and Ancef already on board, my left foot - infected - wrapped and awaiting my surgeon in the morning,... Continue Reading →

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