RA
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I’ve been planning to get back on my regular writing schedule here – and life has been life-ing – so I’ve postponed often, hoping I would have a more sunny report to share soon. However, I am finally writing today, again with a gnarly pain and nerve inflammation crisis – and I am accepting that… Read more
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As I’m still recovering and my brain fog has felt too thick to start with the topics I have saved for this month, it seemed fitting that today is World Arthritis Day. 😉 Among the diagnosis included in World Arthritis Day are: lupus, osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and gout. (There are over 100 types… Read more
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A few weeks ago, I started my new once weekly biologic, Enbrel. As I mentioned in my post about beginning therapy, I am having to be very cautious as I am even more immunocompromised than usual – and, at the same time, COVID is on the rise right now in our area, with a more… Read more
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As I mentioned in a post earlier this week, yesterday I was given my scheduled long acting antibiotic infusion, the first I had needed in some time, for the beginnings of my MRSA cellulitis flaring in my right foot. After discussing everything with my absolutely wonderful infectious disease doctor, overall he is actually happy with… Read more
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So, y’all, it’s been a full month today since my positive Covid test – but really about five weeks since I got sick – and I am still dealing with post-Covid fatigue that is overwhelming. I’m used to autoimmune fatigue – so I think that is why maybe this has caught me so off guard.… Read more
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February 2nd is Rheumatoid Arthritis Awareness Day and – as RA is my OG diagnosis (and the one that gives me all I can handle and then some to this day) – I write a post for it each year – and, in keeping with tradition, I’m also running late (so all is well –… Read more
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I can’t write honestly about the autoimmune life without writing about the times when things go awry and nobody on my medical team or I can seem to help or figure out why. This latest flare I’ve been sharing about has hit my whole body with overwhelming fatigue and generalized pain – but also come… Read more
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Though I’m running a little late for our annual World Arthritis Day talk (it actually falls on October 12th) – another one that had to wait a bit as I was crawling to the finish line of the midterms – I still think it is important that we talk about it each year here. So.… Read more
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As it is Disability Awareness Month, one thing I wanted to talk about – that I’ve mentioned before but never focused on as a topic – is the impact my assorted medications have had on my appearance, particularly the chemo drugs and the prednisone therapy. It may be a vanity issue – but, still, it… Read more
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Every July, in spoonie circles, I begin seeing that it is Disability Pride Month. . . And, every July, though I understand what is meant by this, the word choice – “Disability Pride” – just makes me all kinds of itchy, yucky, cringey. While I can’t abide that phrasing, the idea – bringing awareness to… Read more
