dancing through life – on broken feet
tales of a jesus-loving writer, her adorable little fam jam, the world's most fabulous weenie dog, grace, travel, love, life, and dealing with a rare and incurable autoimmune disease.
I just realized today, October 12th, is World Arthritis Day - and I decided that I should say something about it even though I hadn't planned to write anything else medical this week, but, goodness knows, RA changed many things in my life. I had to laugh too that today was a major rheumatologist appointment... Continue Reading →
The thing about chronic illness is that I truly never know what's coming - and I never know what will be the thing that will just lay me out. I've been MIA because of an ailment that started with a resistant sinus infection. While unpleasant, I've had chronic sinusitis literally my entire life and I... Continue Reading →
Like everyone else, I was just shocked and heartbroken to learn of the passing of Chadwick Boseman when his family shared the news on Friday evening. He was only 43 and had chosen to keep his cancer battle private so it was totally unexpected. A few hours after I saw the news, this well-timed and... Continue Reading →
Actually, I am calling July this. Everyone else mentioning it is calling it "disability pride month" - and I just can't go there. I totally get it - and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices... Continue Reading →
This week has had some significant health changes for me. First - this one is fabulous - I have completed my IV antibiotic therapy and my PICC line was pulled today by home health. Yesterday, I realized since last July - so for a year now - I have spent more time WITH some kind... Continue Reading →
On June 22, Angela Madsen, phenomenal, fearless woman, Paralympian, marine vet, died at sea, attempting to row the Pacific from California to Hawaii alone. She knew the risk, she wanted to go, she went. The documentarian and her crew who were recording Angela's efforts - and have since announced that, per the wishes of Angela... Continue Reading →
On Thursday, I had surgery as scheduled on my left SI joint. It was different in so many ways from any surgery I've had. The Morning Of My Procedure When my husband and I arrived at the hospital, we went through our COVID-19 screening and he was allowed to come and sit with me because... Continue Reading →
Well, there was no discharge for me today - and it seems certain I will make a full week with this admit. And honestly? This has been a really strange hospital stay in so many ways. The Early Days First, as I've mentioned before, the infection manifested suddenly in BOTH feet - what the actual... Continue Reading →
As I started writing early this morning, I was enjoying the view out my window. . . And singing along to The Grateful Dead. . . . . . when my fabulous nurse came in and burst out laughing and said she was so glad someone was having a party up on the cardiac floor.... Continue Reading →
Like the rest of 2020, May has started off. . . not according to plan. I'm writing to y'all having just been admitted to the hospital, with bolus fluids going, my first doses of IV Vanco and Ancef already on board, my left foot - infected - wrapped and awaiting my surgeon in the morning,... Continue Reading →
