RA
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Though I understand its point, I haven’t been able to warm to the idea of Disability Pride Month. The wording is just too . . . awkward. . . for me. I am, however, all aboard for Disability Awareness. And, goodness knows, there is much to consider. I was just sharing with my bestie a… Read more
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Tuesday was World Rheumatoid Arthritis Awareness Day. It falls on February 2, Groundhog Day, every year – and it has been on my radar for 8 years now since my RA diagnosis. I’m running a little behind posting about it this year – as things have been super busy for some amazing reasons I’ll share… Read more
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After posting about an intense and drawn out CRPS flare that finally seemed to be winding down last week, on Saturday I had a good day. In fact, owing to nothing short of an early Christmas miracle, my Bullies even won. I went to bed tired and sore – but feeling as well as I… Read more
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Just today, a young spoonie friend – who has recently, sadly, received several serious diagnosis she is having to adjust to suddenly – made a post on Instagram, saying that three different doctors had all told her something to the effect that she could still have a “good life” or a “decent life” with her… Read more
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I just realized today, October 12th, is World Arthritis Day – and I decided that I should say something about it even though I hadn’t planned to write anything else medical this week, but, goodness knows, RA changed many things in my life. I had to laugh too that today was a major rheumatologist appointment… Read more
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The thing about chronic illness is that I truly never know what’s coming – and I never know what will be the thing that will just lay me out. I’ve been MIA because of an ailment that started with a resistant sinus infection. While unpleasant, I’ve had chronic sinusitis literally my entire life and I… Read more
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Like everyone else, I was just shocked and heartbroken to learn of the passing of Chadwick Boseman when his family shared the news on Friday evening. He was only 43 and had chosen to keep his cancer battle private so it was totally unexpected. A few hours after I saw the news, this well-timed and… Read more
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Actually, I am calling July this. Everyone else mentioning it is calling it “disability pride month” – and I just can’t go there. I totally get it – and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices… Read more
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This week has had some significant health changes for me. First – this one is fabulous – I have completed my IV antibiotic therapy and my PICC line was pulled today by home health. Yesterday, I realized since last July – so for a year now – I have spent more time WITH some kind… Read more
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On June 22, Angela Madsen, phenomenal, fearless woman, Paralympian, marine vet, died at sea, attempting to row the Pacific from California to Hawaii alone. She knew the risk, she wanted to go, she went. The documentarian and her crew who were recording Angela’s efforts – and have since announced that, per the wishes of Angela… Read more
