In less than 36 hours, I’ve been to the ER twice, Urgent Care once (where I finally got the third set of shots that seems to be helping some), and learned that this flare is so bad it is affecting my esophagus, when I choked on rice so badly that it obstructed my airway for a couple of minutes and my esophagus for a good twenty. Not to be too graphic, but lots of fizzy water and vomiting were involved in dealing with that and it was So. Scary.
Needless to say, many tears have been shed over this, the worst flare I’ve ever had.
I’ve encountered doctors with absolutely zero compassion – the very reason chronic pain patients go home from the ER and decide they can’t go on – and amazingly kind physicians who dropped everything to help me.
A stressful family week brought this on – but my precious baby girl has literally been by my side for all of this, running all over the place with me.
Now I can honestly say, though I am still in a great deal of pain, I feel the cloud lifting. The intensity is returning to a tolerable level.
As we had a weekend of wedding festivities planned, we’ve had to make some adjustments. The Beast has a mind of its own.
Tonight, I am headed home to Mom & Pop’s house at the Lake to rest with our daughter and Henry while my husband goes to the Rehearsal and activities.
Then tomorrow hopefully I will be much improved and we will all go to the wedding.
What. A. Mess.
I am so grateful it seems to be improving, at least a little. It has been absolutely horrific.
And I am even more thankful that our daughter and I both see our new specialists next week.
Now I am am just praying and believing and trusting that we will have a good weekend.
Be well, everybody.
Grace and blessings. 💙💜❤️💚💛🧡