Sometimes the spoonie life just blows – no matter how hard we try to push through and keep going and make the best of it. And that has definitely been the past 24 hours for me.
First, I landed in the ER with the cardiac issues I mentioned in the previous post.
While they are no better now, I hopefully have enough additional beta blockers to get me through to cardiology next week now – and that was about the best they could offer.
They were so unfamiliar with what was happening to me that a nurse tried to chart that I was on six weeks of IV antibiotics for CRPS. Ummm, yeah.
Still, after the ER visit yesterday, I felt so ill and weak that I literally came home and collapsed, missing my fabulous outing with my precious friend and being totally OUT for hours.
A Horrific Wake Up
Around 1 AM, I woke up to the WORST pain I have ever experienced.
A few times in the past I have had this pain in my knees I describe as a jackhammer inside them – this happened again but SO much more intense and radiating up and down my legs. I felt like lightening was striking my legs. I was literally screaming and no one could hear me. It was just ungodly.
I finally got to my nerve pain meds and eventually got it under control enough to breathe through it – but this experience was just unbelievable.
I called Sara around 3 AM and she stayed with me for the rest of the night, until the monster flare was over and I was back to a “normal” level of pain.
After that terrifying experience, I – like anybody – am just rattled.
I am doing everything I can possibly do to keep it from happening again – taking nerve pain meds on an increased schedule today, taking my pred on a different schedule as well, adding additional anti-inflammatories to my regimen.
And I am spending the day resting.
I’ve already asked Sara to plan to have a slumber party tonight as well, even though intellectually I realize with all the meds this is unnecessary. I also realize the likelihood of me sleeping more than a few hours after last night is pretty slim.
Still, I am grateful the pain is reasonably under control now.
And we are getting ready to watch some football and chill.
And it will be okay.
As always, onward I go.
Be well, everybody. Take care of yourselves and each other.
Grace and Blessings.