Category: Health

surgery day is here, y’all.

Since last fall – and the beginning of my osteomyelitis and sepsis issues – all of my surgeries have been emergent. They’ve all been done pretty soon after I was admitted from the ER. This SI joint issue has been a different animal though; it has required some additional planning and scheduling, as well as…

Read more surgery day is here, y’all.

thoughts on prednisone, moon face, Ashley Judd, & “if you can’t say anything nice, don’t say anything at all”

I’ve been on prednisone for a LONG time now, y’all. Way too long, in fact. When I first fell ill with Celiac Disease in the fall of 2012, symptoms of my systemic autoimmune disease soon followed – and I soon began receiving frequent steroid injections as well as having to take courses of oral prednisone…

Read more thoughts on prednisone, moon face, Ashley Judd, & “if you can’t say anything nice, don’t say anything at all”

fabulous road tripping, visiting my beautiful bestie, accepting disability accommodations – and knowing that staircases are my mortal enemy now.

We are in the middle of a wonderful road trip to see my bestie/sister friend, Ginny, in Tennessee and it has been just fabulous. Of course, as my CRPS has taken on a life of its own, I’m having to learn to live and travel differently – and this trip I had booked a room…

Read more fabulous road tripping, visiting my beautiful bestie, accepting disability accommodations – and knowing that staircases are my mortal enemy now.

changes.

As y’all can see, things are different here today, and, after saying for so long that I wouldn’t be a chronic illness blogger, I’ve realized that it is time to let go of those ideas. When I was reading through my friend Sara Frankl’s book, Choose Joy, a few weeks ago, she wrote this about…

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some spoonie truths.

Today, I started my day sobbing. I misstepped on Sunday – a small one that a normal person wouldn’t even have taken note of – and some of the broken bones in my right foot shifted more – making them worse and much more painful suddenly. Since then, between the foot and scheduled appointments, I…

Read more some spoonie truths.

a fabulous birthday trip to my beloved city for my sara bug – and some not so fabulous health news. . .

From Monday through Thursday of this past week, my Sara Bug, my Al, and I were off on a fabulous adventure to my favorite place in the world, my home, to celebrate Sara’s Sweet 16. NOLA We headed to NOLA – for Sara and Al’s first visit – and had the most amazing time. We…

Read more a fabulous birthday trip to my beloved city for my sara bug – and some not so fabulous health news. . .

the worst night of my life.

Sometimes the spoonie life just blows – no matter how hard we try to push through and keep going and make the best of it. And that has definitely been the past 24 hours for me. Cardiac Issues First, I landed in the ER with the cardiac issues I mentioned in the previous post. While…

Read more the worst night of my life.