riding out a new storm.

And after the storm,I run and run as the rains comeAnd I look up, I look up,on my knees and out of luck,I look up. Night has always pushed up dayYou must know life to see decayBut I won't rot, I won't rotNot this mind and not this heart,I won't rot. And I took you... Continue Reading →

get busy.

Like everyone else, I was just shocked and heartbroken to learn of the passing of Chadwick Boseman when his family shared the news on Friday evening. He was only 43 and had chosen to keep his cancer battle private so it was totally unexpected. A few hours after I saw the news, this well-timed and... Continue Reading →

disability awareness month.

Actually, I am calling July this. Everyone else mentioning it is calling it "disability pride month" - and I just can't go there. I totally get it - and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices... Continue Reading →

fernweh (so much this now).

fernweh (German): an ache for distant places, missing places you've never been. *craving for travel* As you know if you've been here for awhile, I love to travel. Big adventures, small road trips, little outings around town. . . I just love finding new things to get into with my people. Well. . . Between... Continue Reading →

surgery day is here, y’all.

Since last fall - and the beginning of my osteomyelitis and sepsis issues - all of my surgeries have been emergent. They've all been done pretty soon after I was admitted from the ER. This SI joint issue has been a different animal though; it has required some additional planning and scheduling, as well as... Continue Reading →

changes.

As y'all can see, things are different here today, and, after saying for so long that I wouldn't be a chronic illness blogger, I've realized that it is time to let go of those ideas. When I was reading through my friend Sara Frankl's book, Choose Joy, a few weeks ago, she wrote this about... Continue Reading →

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