dancing through life – on broken feet
tales of a jesus-loving writer, her adorable little fam jam, the world's most fabulous weenie dog, grace, travel, love, life, and dealing with a rare and incurable autoimmune disease.
I don't know about y'all but my social media feeds - as well as my email inbox with all of its news updates - can be pretty unpleasant these days. The election news is so stressing, there is a massive COVID disinformation campaign that is just making me so freaking angry, and, in the meantime,... Continue Reading →
The thing about chronic illness is that I truly never know what's coming - and I never know what will be the thing that will just lay me out. I've been MIA because of an ailment that started with a resistant sinus infection. While unpleasant, I've had chronic sinusitis literally my entire life and I... Continue Reading →
And after the storm,I run and run as the rains comeAnd I look up, I look up,on my knees and out of luck,I look up. Night has always pushed up dayYou must know life to see decayBut I won't rot, I won't rotNot this mind and not this heart,I won't rot. And I took you... Continue Reading →
Like everyone else, I was just shocked and heartbroken to learn of the passing of Chadwick Boseman when his family shared the news on Friday evening. He was only 43 and had chosen to keep his cancer battle private so it was totally unexpected. A few hours after I saw the news, this well-timed and... Continue Reading →
What. A. Week. It's seen two hospital trips - the GI bleed on Monday, then another on Wednesday for an infection in my hand. Like other infections I've dealt with, that started with a minor scrape on my hand on a hinge in a cabinet. I immediately cleaned and bandaged the wound - but it... Continue Reading →
Quite suddenly over the past few days, I developed a significant GI bleed. It became clear quickly that there was no way to manage with waiting on a GI appointment and I would have to go to the ER - which I have tried desperately to avoid - to get to the cause of it.... Continue Reading →
Actually, I am calling July this. Everyone else mentioning it is calling it "disability pride month" - and I just can't go there. I totally get it - and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices... Continue Reading →
fernweh (German): an ache for distant places, missing places you've never been. *craving for travel* As you know if you've been here for awhile, I love to travel. Big adventures, small road trips, little outings around town. . . I just love finding new things to get into with my people. Well. . . Between... Continue Reading →
Since last fall - and the beginning of my osteomyelitis and sepsis issues - all of my surgeries have been emergent. They've all been done pretty soon after I was admitted from the ER. This SI joint issue has been a different animal though; it has required some additional planning and scheduling, as well as... Continue Reading →
I've been on prednisone for a LONG time now, y'all. Way too long, in fact. When I first fell ill with Celiac Disease in the fall of 2012, symptoms of my systemic autoimmune disease soon followed - and I soon began receiving frequent steroid injections as well as having to take courses of oral prednisone... Continue Reading →
