tales of a jesus-loving writer, her adorable little fam jam, the world's most fabulous weenie dog, grace, travel, love, life, and dealing with a rare and incurable autoimmune disease.
Since last fall – and the beginning of my osteomyelitis and sepsis issues – all of my surgeries have been emergent. They’ve all been done pretty soon after I was admitted from the ER. This SI joint issue has been a different animal though; it has required some additional planning and scheduling, as well as…
I’ve been on prednisone for a LONG time now, y’all. Way too long, in fact. When I first fell ill with Celiac Disease in the fall of 2012, symptoms of my systemic autoimmune disease soon followed – and I soon began receiving frequent steroid injections as well as having to take courses of oral prednisone…
We are in the middle of a wonderful road trip to see my bestie/sister friend, Ginny, in Tennessee and it has been just fabulous. Of course, as my CRPS has taken on a life of its own, I’m having to learn to live and travel differently – and this trip I had booked a room…
As y’all can see, things are different here today, and, after saying for so long that I wouldn’t be a chronic illness blogger, I’ve realized that it is time to let go of those ideas. When I was reading through my friend Sara Frankl’s book, Choose Joy, a few weeks ago, she wrote this about…
So, it is CRPS Awareness Month – and closing in on the one year anniversary of my diagnosis from Hale – AND I’ve been battling the flare from my worst, worst nightmares. This post isn’t going to get any blog style points – I’ve just been really out of touch since I’ve been so sick…
Read more a super plain jane honest crps awareness month post.
First off, if you don’t get the Gilmore Girls reference, I am so sad for you. All is not well in your kingdom. . . 🙂 Spending a great deal of my time in bed recently, I have been doing much Netflixing, reading, Rosetta Stoning, and writing. begin at the beginning All that happened was…
Read more my soul sister lorelai would be jealous – because i DO have haunted leg. . .
Today, I started my day sobbing. I misstepped on Sunday – a small one that a normal person wouldn’t even have taken note of – and some of the broken bones in my right foot shifted more – making them worse and much more painful suddenly. Since then, between the foot and scheduled appointments, I…
From Monday through Thursday of this past week, my Sara Bug, my Al, and I were off on a fabulous adventure to my favorite place in the world, my home, to celebrate Sara’s Sweet 16. NOLA We headed to NOLA – for Sara and Al’s first visit – and had the most amazing time. We…
Sometimes the spoonie life just blows – no matter how hard we try to push through and keep going and make the best of it. And that has definitely been the past 24 hours for me. Cardiac Issues First, I landed in the ER with the cardiac issues I mentioned in the previous post. While…
I don’t really know where to begin telling you what this body has been doing over the past week or so. In some ways, it’s been an even more wild ride than my recent hospitalization – and that’s saying something. I suppose I’ll begin at the beginning. CRPS On The Move With all that has…
