I believe in kindness. Also in mischief. Also in singing, especially when singing is not necessarily prescribed. – Mary Oliver
Recently, I have been researching complementary therapies to hopefully improve my health and pain levels – in addition to, not in place of, my traditional medication regimen (though I would love to see that reduced one day – but that isn’t anything I foresee unfortunately). See, with my physicians, it feels as though I am…
*This is just an introduction piece I wrote for another site and I’m posting it here as well. At age 33, I fell quite suddenly ill, not long after my happily ever after wedding to my amazing husband. After some really tough years of a bad situation, I had gotten out, moved on, met my…
Read more My broken body’s journey (so far) – and how I’m carrying on.
First, let me make mention that yesterday, February 2, was World Rheumatoid Awareness Day. RA is the original beast in my world, having brought with it the disability and the broken feets and the CRPS and all the other mean and nasty stuff. By itself, though, RA is more than enough. . . This past…
Today was a tiring – and important – day. I had my long awaited appointment with my Rheumy for him to review all of my information since the start of the CRPS. He did – and immediately confirmed the diagnosis. Though this was not unexpected – and is actually quite helpful as it will get…
Read more confirmation of the big scary diagnosis – and looking towards 40.
Just this past Halloween – a couple of weeks ago – I shared this picture of myself, standing in my costume, ready to go with Sara and Henry and the rest of our bunch for a little bit: That night, if you had seen me walk, it would have been VERY slow – and I…
Read more i think i’ll remember this past week as the week that everything changed.
First, I don’t know how to describe this shuffle and slide and hold on to everything-and-everybody-near-me thing I’ve got going on right now when I try to “walk” – but my mobility has gone to hell in a handbasket in the past couple of days (not that it was great before – but this is…
The smell of hospitals in winter, And the feeling that it’s all a lot of oysters but no pearl. . . – Counting Crows I had a spectacularly shitty medical day today. Truly. Lots to tell. I’ve also had some wonderful times with my nearests and there are some soul stirring things I want to share…
Y’all, it has been a holy hell, beast of a week, with all kinds of new and exciting symptoms manifesting – yay, autoimmune disease – and old foolishness rearing it’s ugly head too. All I have for this is “What the Frack?” As it happens, it’s also Invisible Illness & Disability Awareness Week – that’s…
Madam Pomfrey was holding a large bottle of something labeled Skele Gro. “You’re in for a rough night,” she said, pouring out a steaming beakerful and handing it to him. “Regrowing bones is a nasty business.” – Harry Potter And The Chamber Of Secrets Well, y’all, I have plenty of news and I’m all kinds…
Y’all. It started last night. I was getting everything in order for my clean eating renovation and the girls were planning to start our summer swimming for exercise plan and I was good to go with accountability buddies to really start addressing all this medication weight. . . because it is a major health issue…
