Just this past Halloween - a couple of weeks ago - I shared this picture of myself, standing in my costume, ready to go with Sara and Henry and the rest of our bunch for a little bit: That night, if you had seen me walk, it would have been VERY slow - and I... Continue Reading →
navigating when i really can’t walk. and learning to be speedracer. and amazing jen hatmaker outings. and grace.
First, I don't know how to describe this shuffle and slide and hold on to everything-and-everybody-near-me thing I've got going on right now when I try to "walk" - but my mobility has gone to hell in a handbasket in the past couple of days (not that it was great before - but this is... Continue Reading →
the best of and the worst of.
The smell of hospitals in winter, And the feeling that it's all a lot of oysters but no pearl. . . - Counting Crows I had a spectacularly shitty medical day today. Truly. Lots to tell. I've also had some wonderful times with my nearests and there are some soul stirring things I want to share... Continue Reading →
feeling the invisible.
Y'all, it has been a holy hell, beast of a week, with all kinds of new and exciting symptoms manifesting - yay, autoimmune disease - and old foolishness rearing it's ugly head too. All I have for this is "What the Frack?" As it happens, it's also Invisible Illness & Disability Awareness Week - that's... Continue Reading →
changes.
Madam Pomfrey was holding a large bottle of something labeled Skele Gro. “You’re in for a rough night,” she said, pouring out a steaming beakerful and handing it to him. “Regrowing bones is a nasty business." - Harry Potter And The Chamber Of Secrets Well, y'all, I have plenty of news and I'm all kinds... Continue Reading →
what a freaking day
Y'all. It started last night. I was getting everything in order for my clean eating renovation and the girls were planning to start our summer swimming for exercise plan and I was good to go with accountability buddies to really start addressing all this medication weight. . . because it is a major health issue... Continue Reading →
becoming
I've written often recently about the negatives of my illness - and there are many - but a thought has been following me around that has given me pause: Life is not happening to you; it's happening for you. Even the bad stuff is, in some way, happening for us. And I've heard this in... Continue Reading →
flu should really be a four letter word.
What. A. Yuck. Week. We were two ER visits in with our youngest, Sara, for kidney problems, and she and I were up all night again last night, but she went back to school today anyway, toughing it out. What a trooper I say. ❤️ And, the plan - bahahahaha! - was that our eldest,... Continue Reading →
the hard things.
It has truly been a wild few days here in the Hippie Hut: calls from my attorney with sudden needs related to disability, unexpected nursing requirements (I no longer work as a nurse but I will always keep my license) that have had me chasing myself, and so much going on with working towards our... Continue Reading →
