the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

#highriskcovid19

  • A few nights ago, I went to sleep after a lovely day with my family that also came with some terrible news in my city and state and a somber day in my spoonie community. At the same time, my body was exhausted from a gnarly flare that Just. Won’t. Quit. I’m improving from my… Read more

  • fernweh (German): an ache for distant places, missing places you’ve never been. *craving for travel* As you know if you’ve been here for awhile, I love to travel. Big adventures, small road trips, little outings around town. . . I just love finding new things to get into with my people. Well. . . Between… Read more

  • It seems that everyone has COVID-19 talk fatigue. It also seems that many – at least in my state – have COVID-19 precaution fatigue. I say this because my state, Alabama, was second in the country last week in increased number of infections – and the news this week has been worsening by the day.… Read more

  • In these broken times, I am clinging to John 14:27 so desperately right now. Peace I leave you; my peace I give you. I do not give you as the world gives. Do not let your hearts be troubled and do not be afraid. – John 14:27 NIV Everything in the news, from riots to… Read more

  • On Thursday, I had surgery as scheduled on my left SI joint. It was different in so many ways from any surgery I’ve had. The Morning Of My Procedure When my husband and I arrived at the hospital, we went through our COVID-19 screening and he was allowed to come and sit with me because… Read more

  • Since last fall – and the beginning of my osteomyelitis and sepsis issues – all of my surgeries have been emergent. They’ve all been done pretty soon after I was admitted from the ER. This SI joint issue has been a different animal though; it has required some additional planning and scheduling, as well as… Read more

  • Sometimes it can feel like to be a disabled person is actually to be a professional patient – and this is definitely one of those seasons for me. Considering the complexity of my medical situation – and now what will be needed to correct the problems with my hip – it just can’t be helped.… Read more

  • May is Mental Health Awareness Month and I have wanted to talk about several things related to mental health issues and my own health – but, ironically, my health hasn’t behaved well enough for me to get to that in these past few weeks. So, today I’m going to share about this week’s health adventures… Read more

  • Once was a season of infinite light When the distance from Heaven was not far behind I was close to You, I was close to You Carry me back to that moment in time When the colors and fragments were beautifully bright How I long for You, how I long for You ‘Cause out here… Read more

  • Well, there was no discharge for me today – and it seems certain I will make a full week with this admit. And honestly? This has been a really strange hospital stay in so many ways. The Early Days First, as I’ve mentioned before, the infection manifested suddenly in BOTH feet – what the actual… Read more