the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

RA

  • happy chinese new year! – but it’s the year of the zebra for me.

    If you needed to consult the University of Google yesterday, you saw that even the Google art reflected the Year of the Pig (and it was adorable). My year is shaping up a bit differently though. . . You see, in medical schools everywhere, students are frequently taught an old expression: “When you hear hoofbeats,… Read more

  • the inflammation station.

    First, let me make mention that yesterday, February 2, was World Rheumatoid Awareness Day. RA is the original beast in my world, having brought with it the disability and the broken feets and the CRPS and all the other mean and nasty stuff. By itself, though, RA is more than enough. . . This past… Read more

  • rotten physicians, overdue therapists, divine poets. . .

    Settle in, y’all. This is a long one. First of all, yesterday was ortho day – and that’s never good. But this time it was different. I also had another appointment scheduled after ortho. And I have STILL been incredibly sick with sinus plague that is causing nosebleeds and worsening body pain and fevers and… Read more

  • confirmation of the big scary diagnosis – and looking towards 40.

    Today was a tiring – and important – day. I had my long awaited appointment with my Rheumy for him to review all of my information since the start of the CRPS. He did – and immediately confirmed the diagnosis. Though this was not unexpected – and is actually quite helpful as it will get… Read more

  • bring in the New! (and my people!)

    A couple of days after Christmas, my daughter and I both got sick as Hale. Like laid out with the bronchitis/sinusitis plague, sick as Hale. That’s when I also remembered that I always manage to get super sick right after Christmas – maybe due to being run down or around lots of people or angering… Read more

  • wanting more (and less) in 2019

    Yesterday morning, I read an article about Colin O’ Brady becoming the first person to ever cross Antarctica unassisted, a truly incredible feat. https://www.nbcnews.com/news/world/american-man-first-solo-across-antarctica-unaided-n952186 The explorer who attempted the same, Henry Worsley, in 2016 fell ill and passed away, just 30 miles short of his goal. Still, what an amazing attempt. https://www.theguardian.com/world/2016/jan/25/explorer-henry-worsley-dies-during-antarctic-record-attempt It is also… Read more

  • night.

    My sleep schedule is bizarre to say the least. I often sleep in two or three hour increments. My pain wakes me at all hours. My body will abruptly insist that I go lay down – no matter what I’m doing. I can even sleep for a few hours sitting straight up (my family hates… Read more

  • all alone! whether you like it or not, alone will be something you’ll be quite a lot.

    This is going to be what I call an Easter Egg post, meaning it isn’t going to be circulated on Facebook or anything like that. It’s too personal – and the regular folk won’t understand anyway. This one is really just for me (and any spoonies it might help) – because I’ve had an elephant… Read more

  • picking up my crazy heart to give it one more try (or twelve)

    And this ain’t no place for the weary kind And this ain’t no place to lose your mind And this ain’t no place to fall behind Pick up your crazy heart and give it one more try. – The Weary Kind, Ryan Bingham Before I say all that I need to, let me report that… Read more

  • it seems i have a helluva thing, y’all.

    During the night Sunday night and into early Monday morning, the throbbing pain in my left foot and ankle that I wrote about in my last blog post escalated into the most horrifying and unbearable pain I have EVER experienced. As I point of reference, I didn’t cry during labor with Sara Marie – I… Read more