the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

RA

  • getting our Christmas on. :)

    As I’ve mentioned before, last year we decided – after the loss of a very close friend and my becoming essentially homebound due to my illness – not to postpone things that bring joy, like beginning to celebrate the Christmas season in our home as early as we want to. I LOVE it so much.… Read more

  • remembering ryan – and finding wings.

    When our dear friend Ryan passed away, he didn’t want a memorial service. That type of thing really wasn’t him. He was too full of life for all of that business. So we started celebrating him at our local Dia de los Muertos festival instead with an altar for him. All of the colors and… Read more

  • it’s the most wonderful time of the year. . .

    After my last post about all that is going awry right now, I want to encourage all of us to, yes, pay attention and stand and be heard, but also to be sure we are taking time away from this insanity for plenty of rest and time with loved ones and self care. I’m also… Read more

  • getting back on the (paleo) wagon

    We’ve had so many things going on in our home in the past few weeks. There have been some fabulous things: Our Sara celebrated her 15th Birthday. And my amazing cousin Blair and I finally got to go to our long awaited Lauren Daigle concert. AND my Red Sox won the World Series. If you… Read more

  • the best of and the worst of.

    The smell of hospitals in winter, And the feeling that it’s all a lot of oysters but no pearl. . . – Counting Crows I had a spectacularly shitty medical day today. Truly. Lots to tell. I’ve also had some wonderful times with my nearests and there are some soul stirring things I want to share… Read more

  • feeling the invisible.

    Y’all, it has been a holy hell, beast of a week, with all kinds of new and exciting symptoms manifesting – yay, autoimmune disease – and old foolishness rearing it’s ugly head too. All I have for this is “What the Frack?” As it happens, it’s also Invisible Illness & Disability Awareness Week – that’s… Read more

  • october 16th – so much to say, so much to say, so much to say. . .

    October 16th is a heavy, heavy day and I have many thoughts to share this morning. First of all, I’m the person who takes forever to clean out my inbox and never thinks to delete messages from friends. Example: However, I am so grateful now that I often don’t delete messages from friends after I’ve… Read more

  • sick season is here.

    I woke up to the plague yesterday morning. It’s “just a cold” to a normal human – but I’m not a normal human anymore. I’m immunosuppressed due to a combination of RA meds. So I feel like I have the most terrible case of the flu I’ve ever had in my life – though it’s… Read more

  • a busy day, a good day, and then something that stopped me in my tracks.

    With my bizarre sleep schedule, I often sleep for a few hours at a time and then my pain wakes me up – so I “nap nap” as my Henry knows it, throughout the day when I need to. As such, I woke up at about 3 AM yesterday morning and started working to get… Read more

  • the joy of sharing experiences – alternatively titled “Sara and I adore Stevie Nicks”

    When I take my methotrexate shot, my entire schedule goes straight out the window for about 48 hours. There are chemo comas and stomach issues to ride out – and I just have to roll with it. So that’s where I’ve been. But now I’m up from a long sleep, sharing a bowl of popcorn… Read more