Talking to myself and feeling old
Sometimes I’d like to quit
Nothing ever seems to fit
Hanging Around
Nothing to do but frown
Rainy days and Mondays always get me down
What I’ve got they used to call the blues
Nothing is really wrong
Feeling like I don’t belong
Walking around
Some kind of lonely clown
Rainy days and Mondays always get me down.
Funny but it seems I always wind up here with you
Nice to know somebody loves me
Funny but it seems that it’s the only thing to do
Run and find the one who loves me
What I feel has come and gone before
No need to talk it out
We know what it’s all about
Hanging around
Nothing to do but frown
Rainy days and Mondays always get me down.
— Rainy Days and Mondays, The Carpenters
I’ve loved Thc Carpenters since I was a little girl and I watched a made for TV movie about them with my Daddy and heard Karen’s voice.
This song – one of my favorites – came to mind tonight after several rainy days and a cold front have brought me quite the pain situation that just doesn’t want to let up.
(Additionally, my Henry fell terribly ill at the beginning of the week. Praise the Lord, he is on the mend now. . . but this week has been so ugly.)
While unpleasant, that isn’t what I want to talk about right now though.
It’s the Mondays I want to talk about. . .
See, today, during the pain situation, I got to contended with a different home health nurse – my friend took an in-office job – who is a talented nurse who needs to work on her bedside manner.
So, what did she say to me, after stating she was sooo glad it’s Friday?
“Well, I guess every day is Friday for you.”
Y’all, I am so freaking serious.
Every. Day. With. Chronic. Illness. Is. Waking. Up. ON. A. FREAKING. MONDAY.
BECAUSE I DO NOT KNOW WHAT MY BODY IS GOING TO DO.
I absolutely know there WILL be pain.
I don’t know where all it will be.
I don’t know how widespread it will be.
I pray it isn’t too severe.
I DO know there WILL be pain.
I also don’t know how bad my balance will be.
I don’t know if my hands will be cooperating.
I don’t know if I will discover NEW issues.
I currently don’t know how well or how quickly my right foot is going to heal.
I don’t know how cooperative my vision is going to be.
There are many other variables as well.
So, no, friend, every day is NOT a Friday for me, not some sort of vacay.
It’s a Monday. . .
Don’t misunderstand me. I have a wonderful family – an amazing husband who loves me and always looks after me, a wonderful daughter who always cares for me so well, the world’s best weenie dog, precious parents I talk to every day – a great home, and I love my life. I have so many blessings – and I never forget that.
However, for a nurse to come into my home after a rough rough week and suggest that I am just vacationing through my days?
No.
I make it through my health struggles BECAUSE I have my family and so many good things that keep me going.
I keep fighting for all the good times with my people. And keep learning and working.
And doing my best to share about the spoonie life and what we all deal with.
And to help overcome ignorance.
And to choose joy anyway.
Be well, everybody. Take care of yourselves and each other.
Grace and Blessings.
yikes! I Can’t believe she said that to you! This is HORRIBLE, uncaring and just plain stupid. I am so very sorry…..
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Thank you, sweet friend. You have been on my heart today. I hope you are staying well – and out of the germy mess. Love and prayers!
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Thank you so very much Miranda. Prayers sent up for you this morning.
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Oh my goodness!! That makes me so furious!! For someone, especially a nurse, to say something so rude and mean, breaks my heart for you. š
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I understand as much as possible. Bruce lives this life 24/7/365. He is my person and I am on his rollercoaster ride forever. Sweet girl, I have loved you every day of your life and always will. Unfortunately, there are too many medically trained people as not that have no idea of one day in the life of a chronic pain patient. Praying for you baby, love you so much!! āAuntā Connie
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Oh, Connie, you are my Aunt for sure. I love you and Bruce so much and I pray for you both every day. ā¤
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Some days the words of that Old Carpenters’ song is right on the mark. Some times the work of taking care of the Dragons!! is just TOO tiring. I remember what my friend tells me . ” When one can’t stand , I(Jesus) was the one who carried you. ” Footprints poem. True ! it’s not a bloody cure! but It is a chance to rest and survive. Thank you for your blog. It’s help .
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I’m so glad. ⤠And Footprints was my precious Grandmother, who helped raise me, favorite poem. It is dear to my heart. Sending love and prayers your way!
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