Category: adventures
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road tripping with my precious family – and spoonie sick.
Twice over the weekend, we postponed our trip to the lake to visit Pop for his birthday and Father’s Day owing to my leftover illness/resultant flare that has just been stubbornly hanging on. Along with some (at times) overwhelming fatigue and gnarly body pain, I’ve been dealing with the edges of the really ugly CRPS […]
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fernweh (so much this now).
fernweh (German): an ache for distant places, missing places you’ve never been. *craving for travel* As you know if you’ve been here for awhile, I love to travel. Big adventures, small road trips, little outings around town. . . I just love finding new things to get into with my people. Well. . . Between […]
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fabulous road tripping, visiting my beautiful bestie, accepting disability accommodations – and knowing that staircases are my mortal enemy now.
We are in the middle of a wonderful road trip to see my bestie/sister friend, Ginny, in Tennessee and it has been just fabulous. Of course, as my CRPS has taken on a life of its own, I’m having to learn to live and travel differently – and this trip I had booked a room […]
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changes.
As y’all can see, things are different here today, and, after saying for so long that I wouldn’t be a chronic illness blogger, I’ve realized that it is time to let go of those ideas. When I was reading through my friend Sara Frankl’s book, Choose Joy, a few weeks ago, she wrote this about […]
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a fabulous birthday trip to my beloved city for my sara bug – and some not so fabulous health news. . .
From Monday through Thursday of this past week, my Sara Bug, my Al, and I were off on a fabulous adventure to my favorite place in the world, my home, to celebrate Sara’s Sweet 16. NOLA We headed to NOLA – for Sara and Al’s first visit – and had the most amazing time. We […]
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keep exploring.
First Things First Before I get into what I want to talk about today, I need to share that my Henry had cataract surgery on Tuesday and had some complications. It caused his diabetes to spiral out of control and he had to be admitted to the hospital on Thursday and is still there. As […]
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my illness and disability related issues and my henry too.
It has been a wild ride lately with my health and some new therapies, as well as some experiences I’ve had – along with my Ginny – as I’ve recently gotten to experience life as a significantly disabled person in my smartchair. There are several things I want to share. First, “New” Old Treatments In […]
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home! and a goulash type post.
I’ve been doing SO much sleeping since I last wrote – but now it’s time to get all caught up. Journeying Home On Tuesday, we had a fabulous trip back. During the first part of our return home, from Montreal to Newark, we were on a very small plane, a United Express, and I, having […]
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more fabulous adventures. and all packed up to head home.
As I write to you now, it is only a few hours before Ginny and I hop in our cab for the airport to head home to see our peoples – and we are both so ready. We have loved every minute of our time here in this wonderful city. . . but we are […]
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a grand adventure. and a few more days to go. . .
So, friends, I’ve been trying to write to you for several days now, but, honestly, every time I sit still, I fall asleep. It’s a wonderful tired – my Ginny and I have been having the most amazing time in Montreal, a city who has definitely stolen my heart, and I can’t wait to tell […]
the autoimmune hippie. 