the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

spoonie life.

  • a tale of a ten day spoonie sick

    Just today, a young spoonie friend – who has recently, sadly, received several serious diagnosis she is having to adjust to suddenly – made a post on Instagram, saying that three different doctors had all told her something to the effect that she could still have a “good life” or a “decent life” with her… Read more

  • it’s CRPS awareness month – and goodness knows mine has shown up and shown out. . .

    So, I’m actually running a day late for CRPS (Complex Regional Pain Syndrome) Awareness Month – because, honestly, I had the simplest procedure last month that has triggered a flare, bringing just surreal consequences – and it has taken me awhile to get ready to write as I am still very much in the midst… Read more

  • so grateful.

    I have to be honest and say that my Thanksgiving started as I told my family probably not as the sickest I’ve ever BEEN – but certainly as the sickest I’ve ever FELT if that makes any sense. After several days of progressive nausea and illness trying to finish up an antibiotic (one of the… Read more

  • counting to 1000.

    I’ve written in the past about how much I love Ann Voskamp’s work. I find her writing just beautiful and her books and blog posts speak to me in so many ways. Her first book, released ten years ago, One Thousand Gifts, focuses on eucharesteo – the greek word for thanksgiving, whose roots are thanksgiving,… Read more

  • oh, the oscopies and the anxieties. . .

    As you can see, yesterday was a super fun day in my world.  After a long long (LONG) time contending with massive GI symptoms, I had stalled as long as I could and I had to have an endoscopy and colonoscopy. First, let me say that I have no problem actually having the procedure –… Read more

  • the last (wo)man standing.

    Gonna choose sunlight Gonna drink wine Bound to win a few fights, before my time Gonna make love now Ain’t the future bright Gonna be the last man standing tonight. . . Gonna make a difference Gonna speak my mind Even when my nerve fails Even in the dark times Gonna count the blessings Celebrate… Read more

  • someone I love is fighting like hell – and it’s COVID talk time.

    Wednesday was not the first day since the COVID-19 pandemic began that I learned awful news related to this horrible disease and someone I care about. No. However, it has been one that has absolutely knocked me down. Someone dear to me is terribly ill with COVID-19 and she is in isolation and I know… Read more

  • don’t be afraid, child of God – and look for the good things.

    I don’t know about y’all but my social media feeds – as well as my email inbox with all of its news updates – can be pretty unpleasant these days. The election news is so stressing, there is a massive COVID disinformation campaign that is just making me so freaking angry, and, in the meantime,… Read more

  • back from the latest round.

    The thing about chronic illness is that I truly never know what’s coming – and I never know what will be the thing that will just lay me out. I’ve been MIA because of an ailment that started with a resistant sinus infection. While unpleasant, I’ve had chronic sinusitis literally my entire life and I… Read more

  • music is medicine.

    As I wrote in my most recent post – last week – things have been sickly for me lately. Sometimes it just happens that way. This week, we also have a hurricane rapidly approaching my state as well – so my joints definitely won’t be springing into action just yet. However, I’ve been working on… Read more