the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

osteomyelitis

  • rainy days and mondays on my mind

    Talking to myself and feeling old Sometimes I’d like to quit  Nothing ever seems to fit Hanging Around Nothing to do but frown Rainy days and Mondays always get me down What I’ve got they used to call the blues Nothing is really wrong Feeling like I don’t belong Walking around Some kind of lonely… Read more

  • dear healthy friends, i want to live too – a little covid-19 post

    Y,all, I’m sure there isn’t a soul reading this who isn’t well-versed in COVID-19, or coronavirus, by now (as we all probably should be) – and, for the love, wash your hands. As news of its spread continues, public reactions are mixed, from a state of  paranoia to total nonchalance. There is one response, though,… Read more

  • so freaking homesick – and with a new (crappy crummy bummer) diagnosis.

    Y’ALL. I have been in this hospital for six days now – and I REALLY thought I would be discharged today – but. . . NO. Hopefully tomorrow. We are still waiting on some cultures and the proper home medical equipment I need to come in. I miss spending time with my husband. I miss… Read more

  • the waiting place.

    As I write to you, it’s 2 AM and it’s quiet here on the 12th – the top-  floor of the hospital. My sweet Sara Bug is working next to me and it’s raining hard against our window. The view is amazing. I am on inpatient Day 5, NPO, awaiting surgery on my right foot… Read more

  • a happy (hospital) valentines day to me and mine.

    Over the past several days, I have been getting progressively weaker. And still having crazy night sweats. And developing some crazy GI symptoms. And, of course, my right foot still hasn’t been healing. And my labs have been wonky. . . All of this despite the fact that I have been on some incredibly strong… Read more

  • finding purpose in suffering

    There’s absolutely no tidy pattern as to gets pain and who gets peace. How had I not seen that the brokenness of this world is so all-encompassing that it encompasses all of us? . . . This is the deal we all get: guaranteed suffering. It is coming, unstoppable, like time. There are graves coming,… Read more

  • some complications, keeping my head above water, and my new sidekick.

    I’ve got to keep the calm before the storm I don’t want less, I don’t want more Must bar the windows and the doors To keep me safe, to keep me warm Yeah, my life is what I’m fighting for Can’t part the sea, can’t reach the shore And my voice becomes the driving force… Read more

  • when medical care is traumatic

    It’s safe to say that going from “my right foot is really hurting and I think this may be another round of osteomyelitis” – which would have been plenty bad – to a hospital stay with sepsis and blood sugars at levels of near ketoacidosis at times, as well as absolutely unbelievable lactic acid labs… Read more

  • doing the little things I can, making small steps forward with my health, rejoicing in simple but perfect blessings . . . grateful for my smurf life.

    If I could tell the world just one thing It would be we’re all okay And not to worry because worry is wasteful And useless in times like these I won’t be made useless Or be idle with despair I’ll gather myself around my faith For light does the darkness most fear. My hands are… Read more

  • changing my word.

    As I wrote in my previous post, I got REALLY sick earlier this month and will be on IV therapy for the next several weeks as I continue to heal. I went septic – which I’m still shaken over – and, earlier this evening, I saw this article, which hasn’t helped my feelings: https://www.dailyrecord.co.uk/news/scottish-news/sepsis-now-bigger-killer-cancer-21295621?fbclid=IwAR2bej6E8qMtiMmngnfNLawPXfQaSBiQjp9ac_v7lEL_j_CTpGNd9I0qFaI Apparently,… Read more