the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

our fam jam

  • disability awareness month.

    Actually, I am calling July this. Everyone else mentioning it is calling it “disability pride month” – and I just can’t go there. I totally get it – and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices… Read more

  • fernweh (so much this now).

    fernweh (German): an ache for distant places, missing places you’ve never been. *craving for travel* As you know if you’ve been here for awhile, I love to travel. Big adventures, small road trips, little outings around town. . . I just love finding new things to get into with my people. Well. . . Between… Read more

  • i say it’s love. . .

    Is it the face of a child Is the thrill of danger Is it the kindness we see in the eyes of a stranger Is it more than faith Is it more than hope Is it waiting for us at the end of our rope I say it’s love I say it’s love Is it… Read more

  • happy 7th birthday to our baby baby boy.

    As my long time readers know, my precious service dog, Henry, joined our family back in August of 2017 at the suggestion of my cardiologist when I was struggling mightily with my anxiety disorder and my heart rate was running amok. This was shortly – just a few weeks – after I had to give… Read more

  • doctors and surgeries and vanco, oh my.

    Sometimes it can feel like to be a disabled person is actually to be a professional patient – and this is definitely one of those seasons for me. Considering the complexity of my medical situation – and now what will be needed to correct the problems with my hip – it just can’t be helped.… Read more

  • a health detour and some mental health talk for awareness month. . .

    May is Mental Health Awareness Month and I have wanted to talk about several things related to mental health issues and my own health – but, ironically, my health hasn’t behaved well enough for me to get to that in these past few weeks. So, today I’m going to share about this week’s health adventures… Read more

  • on heparin and holter monitors and other medical whatnots that have come my way this week. . .

    Well, there was no discharge for me today – and it seems certain I will make a full week with this admit. And honestly? This has been a really strange hospital stay in so many ways. The Early Days First, as I’ve mentioned before, the infection manifested suddenly in BOTH feet – what the actual… Read more

  • being a patient, being a nurse, facing COVID-19. . . some thoughts early this Tuesday morning.

    As I’ve been inpatient for the past six days now, I’ve been talking with the nursing staff here about what they have witnessed with COVID-19 and I’ve been reading the news and trying to understand what’s happening as restrictions are lifted in my state – and there are several things weighing on my mind and… Read more

  • inpatient in times of covid. . . and staying grateful . . .

    As I started writing early this morning, I was enjoying the view out my window. . . And singing along to The Grateful Dead. . . . . . when my fabulous nurse came in and burst out laughing and said she was so glad someone was having a party up on the cardiac floor.… Read more

  • inpatient again. onward.

    Like the rest of 2020, May has started off. . . not according to plan. I’m writing to y’all having just been admitted to the hospital, with bolus fluids going, my first doses of IV Vanco and Ancef already on board, my left foot – infected – wrapped and awaiting my surgeon in the morning,… Read more