the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

RA

  • a spoonie surviving the hurricane (and it was two hours away when it came through)

    Yesterday morning, I woke up with some gnarly pain – which I expected with the absolutely terrifying hurricane coming into the coast: Sara and I worked to get what we needed to done fairly early but this afternoon I needed to run by my doctor’s office for some labwork and pick up a couple of… Read more

  • a big Saints celebration, yummy food, and bracing for a storm.

    Yesterday, my beloved Saints were playing on Monday Night Football and my husband was off work for Columbus Day too so it was a good good day. As a treat, I made my super fabulous, not-at-all-low-carb risotto with green peas. Though totally on the “not super healthy” end of the spectrum, it is made entirely… Read more

  • my big sick.

    I know that I’m sick. So does my family. So do my friends. So do all of you. I write about it. I take steps to deal with it. I’ve had to give up my work because of it. I’m having to regrow my hair due to it. However, in the past two years  it… Read more

  • feeling grateful for some amazing medical support.

    For the past several years, I’ve seen SO many specialists – and had so many trips to the emergency room – that I haven’t seen just a basic primary doctor. It really just got away from me and I began to view my Rheumatologist as my PCP because my autoimmune conditions so severely impact my… Read more

  • a spoonie-get-well week.

    It’s a medical week here, with more extra doctor’s appointments and whatnot and some conditions flaring that haven’t in quite some time, in addition to my RA. So today, during the day, I got all of the sleeps. Yesterday, though, Sara and I rode with my husband to see our family, and got to visit… Read more

  • 18 months – and a good good day. =D

    Yesterday was crammed full of All. The. (Good). Things. So much to tell. First, I got a notification that it was my 18 month soberversary: I know I’ve written often about all things substance abuse and sobriety – but this is different. I was laughing at myself earlier because I used to have a drink… Read more

  • chasing dreams in magazines.

    I’ve been chasing dreams in magazines the last ten years, And the way you treat each other’s up to you, But it can’t feel all that good to be so scared, I guess I learned that too. – Stephen Kellogg, Milwaukee Last night my husband and I re-watched the movie Secretariat on Netflix. We both… Read more

  • getting back up.

    It has been the worst few days, physically and emotionally. Monday afternoon, my precious bestie left flowers and prezzies for Sara and for me on our front porch – even though she was sick herself and out of spoons to boot. She is just the very best. And the extra love was much needed. Hell… Read more

  • good stuff, rough stuff, and onward.

    First of all, after yesterday’s major issues with our older daughter, wouldn’t you know that I logged on for online church this morning and this was today’s sermon topic: Here is the link to this wonderful sermon if you want to watch it: https://www.churchofthehighlands.com/media/message/surviving-lifes-worst-moments I so needed it today. As I said yesterday, God’s got… Read more

  • feeling small.

    we are frail, we are fearfully and wonderfully made forged in the fires of human passions, choking on the fumes of selfish rage and, with these our hells and our heavens, so few inches apart we must be awfully small and not as strong as we think we are. – rich mullins   We had… Read more