the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

RA

  • living that curvy life and new medical devices. yippee!

    Time off in Hippieville equals, among other things, projects in the Hippie Hut, frequent doctor visits, and crazy sleep schedules. This particular stretch of downtime has been no exception and I’ve found myself on a “sleep when I’m tired” type of schedule that usually has me napping from 12 AM to 4 AM or so.… Read more

  • changing perspectives

    I’ve been learning some new things about my RA this week and having some new realizations. Yesterday, my pain got progressively worse throughout the day, despite having been to the ER for steroids and whatnot a few days before and being on a taper. By the time my husband got home, I was in extreme… Read more

  • the latest from miranda’s spot

    For the past week, I’ve wanted to write but haven’t because all I really had to talk about was illness and RA and Lupus stuff and I felt like people get tired of reading that. However, today, as I was looking on my Insta at what friends in my Spoonie community were posting, I realized… Read more

  • #fixitjesus (today was that rough)

    At the end of last week, my bestie and I made a fabulous trip to the ATL for some girl time and some IKEA shopping. As always, I love, love, love bestie day – I would tag along with her for yearly income tax and colonoscopy day if she asked me to – and my… Read more

  • finding the right frame of mind, bird by bird

    My amazing teacher/coach/friend Holly, from Hip Sobriety, always says we handle things when it comes to recovery and sobriety bird by bird, that is to say one issue at a time. And I totally get that and it works and makes sense to me. For some reason, when it comes to health issues though, I… Read more

  • sometimes the answer is simple

    Sometimes your shift really sucked out loud, you got off an hour late, you think NOTHING can help this situation. . . Then, driving by Sonic, you see that no one is there, as you remember that slushes are $0.99 at this time of day. And you pull in and Mumford and Sons is playing,… Read more

  • realizing i am so so much sicker than i thought (sunshine and roses, this one isn’t)

    A few posts ago, I wrote about the awful effects of chronic pain on a person’s psyche. I’ve seen it in my patients. I’ve witnessed it in my friends and family members. I’ve dealt with it myself. And I’ve always known that managing chronic pain in someone who has multiple conditions, like I do, is… Read more

  • increasing the poison

    Today, I came across this article on The Mighty and posted to my Facebook: https://themighty.com/2017/06/moon-face-prednisolone-lupus/ And it was definitely a moment of synchronicity. Because that was already, in part, what I wanted to write about. See, this weekend at work was not a good weekend, both in terms of how things went and how well… Read more

  • getting back to normal in hippieville

    After last night’s terror, today has been all about this: And then this: And I finally did this around 2 PM too: And now I’m packing and getting ready to go see this wonderful human: So I’m starting to think I’m going to make it. Hallelujah. We can do hard things. Even pulling through waking… Read more

  • the scariest night of my life – alternatively titled “I’m either giving up food or sleep. My body can no longer be trusted.”

    As I wrote in my last post, I’ve been dealing with a kick ass flare – not great but nothing new. And, after I posted yesterday afternoon, it landed me in the ER for some high dose steroids and anti-inflammatories – again, not great but nothing new. I then came home, ate dinner, and hung… Read more