RA

Tonight I watched the new Netflix documentary about Lady Gaga (I love her music and think she is a fabulous person as well). The film covers the making of the album, Joanne, about her aunt who died from Lupus complications and as well as her own MD visits to deal with her chronic pain which… Read more

This morning (well, technically, yesterday morning) I got up and got ready early (for me) to go with my husband over to some of our dear friends house to drop off some furniture – and, more importantly for this crazy dog lady, for Henry to take their adorable dog, Checkers, a present we’ve had for… Read more

Since the onset of my illness – and especially since my feet have taken to spontaneously breaking – I have been unable to exercise. This has been particularly upsetting for me as I used to be an avid runner, even marathoning once upon a time: While I have accepted that I likely won’t be running… Read more

All of my life, I’ve hated wearing my hair short. And, recently, on my RA meds, it has gone from shedding to coming out in clumps. Add to that, my Rheumatologist just added another, stronger RA med earlier this week, one whose side effect profile includes a high likelihood of hair loss. Combined, this left… Read more

My body is falling apart. I now have two broken feet and I found myself getting xrays on Friday for what I feared was a broken ankle. Thankfully it turned out to be a high ankle sprain. Still, I didn’t DO anything to injure it and it is quite painful. In addition to these spontaneous… Read more

Last Tuesday morning, I woke up with my broken left foot that I am currently undergoing bone growth stimulator therapy on and a healthy right foot. I went about my usual (very limited) activity throughout the day. By Tuesday night, it was clear to me that I also had a broken right foot, as it… Read more

Over the past few months, as my foot has spontaneously broken again – and isn’t healing well – and my autoimmune disease continues to be an ongoing roller coaster ride, it has become clear that my days of working as floor nurse are coming to an end. Now, following the advice of my doctor and… Read more

I’ve been having a beast of a time these past few weeks. Of course I saw ortho and wasn’t healing. He ordered the bone growth stimulator, and, once insurance finally approved it, it turns out that I am expected to use it for ten waking hours per day for more than three months. I also… Read more