the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

RA

  • a rude awakening

    As an autoimmune patient, I’ve written a great deal about the experience of my disease process. And I’m sure I will continue to share what I experience in the future. Honestly, though, I wasn’t sure I was going to share what I woke up to earlier today – because I don’t quite know HOW to… Read more

  • making lemonade

    After learning from my ortho doc on Friday morning that my third metatarsal in my right foot has fractured (it makes my sixth current fracture in my feet) and experiencing severe pain in my right knee and hip that is making it even more difficult to walk, I am spending this weekend in bed resting… Read more

  • pain

      Just as I have been in the midst of a major pain crisis, I saw this the other day: http://deadstate.org/jeff-sessions-chronic-pain-sufferers-should-take-an-aspirin-and-tough-it-out/ The Attorney General of the United States stated that we chronic pain patients need to “take some aspirin and tough it out.” WOW. When I first saw this, I had to really sit and… Read more

  • a new word

    I suppose the weight of all that is going on right now has caught up with me. We are still waiting on our eldest daughter’s placement in her program and it has been a struggle and a terrible strain on our family for sure. Our youngest daughter is exhibiting the symptoms of full-blown autoimmune disease… Read more

  • a new perspective (sometimes mid-post)

    I’ve decided to leave this, the post I had started about the crummy few days I’ve been having, as is, and then I have some new thoughts to add: At my ortho visit on Tuesday, I learned that, in addition to my left second and fourth metatarsals still being fractured, I have a fracture of… Read more

  • when spoonies get regular people sick

    So, today I’m writing from my quarantined spot in my bedroom, keeping the plague I woke up with to myself (I hope) and trying everything I know to manage some gnarly symptoms and get well. See, last week, our eldest came home with the flu. And I treated her and she is now recovered and… Read more

  • on chronic pain

    Yesterday, I got no fewer than five breaking news updates on my phone that Tom Petty’s cause of death was an accidental drug overdose. I later read that he was suffering from a broken hip and that it was a combination of fentanyl patches, oral opioids, and benzodiazepines. Similarly to when Prince passed away due… Read more

  • on broken feets and birthdays

    As I wrote in my previous post, I was REALLY upset about this perma-broken foot situation. Anybody would be. However, I’ve had some time to rest and enjoy home time with my better half working on the Hippie Hut and gathering my thoughts and I am in a much better place now in my head… Read more

  • the hard things.

    It has truly been a wild few days here in the Hippie Hut: calls from my attorney with sudden needs related to disability, unexpected nursing requirements (I no longer work as a nurse but I will always keep my license) that have had me chasing myself, and so much going on with working towards our… Read more

  • it’s a spoonie’s life

    Due to some sort of glitch in my doctor’s e-script system, the refill I requested earlier this week of one of my non-narcotic, routine nerve pain medications that at least helps the incredible burning pain in my spine and knees was sent in but not received by my pharmacy. When I called my doctor’s office,… Read more