the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

mental health.

  • thoughts on prednisone, moon face, Ashley Judd, & “if you can’t say anything nice, don’t say anything at all”

    I’ve been on prednisone for a LONG time now, y’all. Way too long, in fact. When I first fell ill with Celiac Disease in the fall of 2012, symptoms of my systemic autoimmune disease soon followed – and I soon began receiving frequent steroid injections as well as having to take courses of oral prednisone… Read more

  • some spoonie truths.

    Today, I started my day sobbing. I misstepped on Sunday – a small one that a normal person wouldn’t even have taken note of – and some of the broken bones in my right foot shifted more – making them worse and much more painful suddenly. Since then, between the foot and scheduled appointments, I… Read more

  • addiction & sobriety

    As you all know, I’m writing a book about death, and, in doing some research this weekend, it lead me down a rabbit hole of sorts with arguably my favorite actor of all time, Phillip Seymour Hoffman. First, I watched this devastating documentary: It is such a painful reminder of his loss. Even more heartbreaking,… Read more

  • not you, Jarrid. please, not you.

    Life Ain’t Always Beautiful Life ain’t always beautiful Sometimes it’s just plain hard Life can knock you down, it can break your heart. Life ain’t always beautiful You think you’re on your way But it’s just a dead end road at the of the day. But the struggles make you stronger  And the changes make you… Read more

  • my body has gone rogue – but i’m still fighting.

    I don’t really know where to begin telling you what this body has been doing over the past week or so. In some ways, it’s been an even more wild ride than my recent hospitalization – and that’s saying something. I suppose I’ll begin at the beginning. CRPS On The Move With all that has… Read more

  • a time to just tell it all.

    You will come to know things that can only be known with the wisdom of age and the grace of years. Most of those things have to do with forgiveness. – Cheryl Strayed Plenty of humans are monstrous, and plenty of monsters know how to play at being human. – V. A. Vale For many… Read more

  • my illness and disability related issues and my henry too.

    It has been a wild ride lately with my health and some new therapies, as well as some experiences I’ve had – along with my Ginny – as I’ve recently gotten to experience life as a significantly disabled person in my smartchair. There are several things I want to share. First, “New” Old Treatments In… Read more

  • what irrepressible anxiety feels like. and why i don’t mind sharing anymore.

    Often, I have a stress or worry on my mind. Sometimes it’s a big thing – but not always. Sometimes it’s my own health concern or worry for a friend or situation with a family member. . . Or it can be something incredibly simple that I’ve just thought over for a few moments. .… Read more

  • becoming my own crps expert – and taking my life back.

    In my little corner of the world, several of my near & dear have been facing some really damn HARD – my lifelong friend with metastatic breast cancer in her spine has just learned that she may have to deal with ANOTHER effing spinal surgery, a precious Tt sister had a beast of a relapse… Read more

  • thank goodness, my Henry is on the mend – and back by my side. . .

    Five days ago, I turned 40 and my amazing family just spoiled me so. . . Beautiful gifts from my husband and daughter and our Mom, Pop, and GJ. . . and flowers and Mumford and Sons tickets (!!!). . . and vegan GF cupcakes from this heavenly little bakery. . . It was wonderful.… Read more