the autoimmune hippie.

Laughter is immeasurable. Be joyful though you have considered all the facts. . . Practice resurrection. – Wendell Berry

complex regional pain syndrome

  • What. A. Week. It’s seen two hospital trips – the GI bleed on Monday, then another on Wednesday for an infection in my hand. Like other infections I’ve dealt with, that started with a minor scrape on my hand on a hinge in a cabinet. I immediately cleaned and bandaged the wound – but it… Read more

  • Actually, I am calling July this. Everyone else mentioning it is calling it “disability pride month” – and I just can’t go there. I totally get it – and agree with the concepts. The idea that there is no reason to be ashamed of our physical or mental limitations, our scars, our limps, our devices… Read more

  • Well, there was no discharge for me today – and it seems certain I will make a full week with this admit. And honestly? This has been a really strange hospital stay in so many ways. The Early Days First, as I’ve mentioned before, the infection manifested suddenly in BOTH feet – what the actual… Read more

  • As I started writing early this morning, I was enjoying the view out my window. . . And singing along to The Grateful Dead. . . . . . when my fabulous nurse came in and burst out laughing and said she was so glad someone was having a party up on the cardiac floor.… Read more

  • Like the rest of 2020, May has started off. . . not according to plan. I’m writing to y’all having just been admitted to the hospital, with bolus fluids going, my first doses of IV Vanco and Ancef already on board, my left foot – infected – wrapped and awaiting my surgeon in the morning,… Read more

  • During my January hospital admission, I learned that – despite having made no changes in my diet – my diabetes had shifted in a huge way from August of the previous year. My hemoglobin A1C – a measure of how well my diabetes had been controlled over the previous several months – had been 7.1… Read more

  • I’ve commented before that it seemed particularly. . . ironic. . . that the distance runner keeps losing function in my feet and legs. First, it was the multitudinous stress fractures – now present in every metatarsal. Then rounds of CRPS in both feet – excruciating to endure AND they have changed the way my… Read more

  • Earlier, when the Covid-19 situation was developing, I expressed my concern as to what spoonies would do when we had a “normal” – for us – health crisis. Well, I found out last night. . . See, about five days ago, I literally just stood up from bed and felt awful pain in my left… Read more

  • As the quarantine began in my state some days ago now, I’ve noticed an increase each day in the “I’m bored” posts. The “what do I do” posts. The “I need to see people” posts. Just the general stir-crazy posts. It didn’t take very many days – and I’m not without sympathy. Some of these… Read more

  • As we all know, the whole damn world is just upside down right now. COVID-19 is spreading like wildfire. Everyone SHOULD be essentially at home if they can. . . some people are listening; some aren’t. Some cities have enacted shelter in place; some entire states have. It’s surreal. As my home state is experiencing… Read more